| |
Johns Hopkins Breast Center Testimonials
Testimony from the Women's Health and Cancer Rights Act of 1997 presented November 5, 1997 by the U.S. Senate, Subcommittee on Health Care (S 249)
Below are comments from patients treated at the Johns Hopkins
Breast Center. Some comments came to us in the form of letters;
others were provided during our patient satisfaction/ quality
of care surveys.
I am writing to thank you again for being so strong and steady in all of the care I have received this past year following my breast cancer surgery. It was approximately one year ago today when I sat down and talked to you for several hours regarding my breast cancer and surgical options. I feel it is a real victory to be able to write to you today and let you know that things are going very well. Your even handed, well balanced, and thoughtful discussion that day last August has stayed with me throughout my recovery. I am so very grateful to you for that.
I thought I would catch you up w/what is happening w/me. This past April, I started going to the Breast Cancer Support Group 1x a month at Inova Fair Oaks Hospital. It is facilitated by a Social Worker from the Life w/Cancer Program, Sage Bolte. Sage sends us occasional emails regarding helpful resources. One such resource is the Living Beyond Breast Cancer Website, which has teleweb and audio broadcasts w/ a wide range of helpful topics. A broadcast that I tuned into recently was about workplace issues and bc. It was extremely helpful b/c I was interviewing for a summer prn job as an SLP at a skilled nursing facility, and I had good information of what I needed to disclose, or "not".
In June and part of July, I attended a six week class at the Life w/Cancer Center in Fairfax. The Center opened in April. There are a variety of classes from breast cancer 101 presurgery, to chemo 101, exercise classes, and lectures/updates from physicians. The six week class had an optional exercise class before the lectures. The lectures entailed having a radiologist, nutritionist, geneticist, physical therapist, volunteers from rowing and cast fishing orgs, and an oncologist to talk about updates from ASCO. Marsha Komandt is the Nurse who spearheaded the classes. In short, it was excellent. They also offer classes/lectures about vitamin D, and "Fighting Cancer w/a Fork". Although I did not have time to attend the exercise classes due to my work schedule, it inspired me to seek out a personal trainer when my school contract was up. I've been working out 2x a week w/ my personal trainer and have gotten back into interval training w/the treadmill. I am excited and surprised at the strength I am regaining following the mastectomies. The more I work out, the more my worries and fears about the weakness of my muscles or the possibility of lymphedema...have melted away. I am 56, so getting reconditioned is a challenge, but worth the effort. In short, using these resources helped me reconnect and bridge the gap between being fatigued and exhausted all day, to finding ways to re-establish a somewhat normal life (whatever normal is!).
Having said all of this, I received a phone call 2 weeks ago from my cousin (paternal) who had bc at the age of 29. She is now 50, and has been dx'd w/stage IV ovarian cancer. She is seeing Dr. Bristow, and had also consulted w/Dr. Visvanathan (she tested pos. for BRCA 2 in the fall). Coincidentally, Leslie told me she consulted w/Dr. Jacobs for a mastectomy of her other breast about a month ago. She was also impressed w/Dr. Jacobs! Unfortunately, w/in the last month or so, two more of my cousins, and Leslie's daughter, tested pos. for the BRCA2 gene. One of your suggestions was to have genetics counseling to see if I wanted to pursue genetics testing, and I did so at the end of October of 2008. I tested neg for BRAC 1 and 2, w/suggestions of a possible strong "familial" hereditary cancer and/or poss combination of environmental factors. In other words, nothing definitive. It was a stunning phone call to receive from my cousin recently, and I am angusihed for her. Imagine if I had not had genetics tesing done, and had received that phone call, I would have panicked. As it is, it is worrisome.
I have a new oncologist b/c Dr. Beveridege has moved to Houston to be the Medical Director of US Oncology. I now see Dr. David Dunning in the same practice. He will be talking to the genetics couselor, Jennifer Axilbund, and wants to confer w/the lab (Myriad) to review my genetics testing again. I spoke at length w/Jennifer and feel reassured at this point. She is a dynamic and thorough counselor. Whether I will eventually have an oopherectomy has yet to be determined, but at least I am prepared.
So, as you can see, things are moving along. There have been some twists and turns in that my husband has had another tia and we will be seeing an Interventional Radiologist next week (still, he has not lost any functioning but the add'l tia puts him into another category). I tell you these things b/c I think about the guidance you've given me before and after my surgery. In other words, you provided a pathway for me w/many recommendations, so when I was able, I followed through when it was appropriate. I've met many other women since w/bc, and they simply haven't had the kind of care I've received. I realized that it was up to me to make decisions and do what I could. Having an overall perspective from you, helped move me along when I was ready. Therefore, I have been able to regain my strength physically and emotionally. Facing family medical issues is not easy, but I feel stronger from the help you've given me.
Here are the things that you helped me with that have moved me closer to "normalizing" my life (it is an ongoing issue):
In the first meeting, you presented all options, and answered all my questions. You took great care not to overwhelm me. You had a radiation oncology nurse talk to me, so my understanding of radiation and the procedure was more updated (my experience had been from my dad's and sister's radiation, 15-30 years ago...which is quite different than it is today). Although I did not have to have radiation, I was better prepared in the event that my treatment options would include that.
You respected my choice of double mastectomies. Even though I had other options, you understood the extensive family hx of cancer I had, and honored my perspective. You did not overplay or underplay the options. In my mind, there was just too much cancer in my family, and I had seen my sister suffer w/the recurrences. I suppose I am more practical, and I know my physical limitations w/other medical issues.
You told me the truth, in that during surgery, I might have positive nodes, and also depending upon the nature/grade of the tumor, I might have to have radiation and/or chemo (including information that if I decided on a lumpectomy, there was a certain percentage chance that margins would not be clear, and that a reexcision would be necessary).
You encouraged me to tell my friends and family and let them know I had a positive outlook. You also prepared me for the fact that I would have many different kinds of reactions from them, and that to maintain my decisions and understand that some people would have varying degrees of reactions and/or support. I was shocked w/some reactions, but being prepared was helpful. Overall, people were suppportive. Some were not. I was saddened, but was able to separate their issues from mine.
Because you prepared me for that, I was able to write an email to my friends before my surgery. I was straight forward and told them the truth. I also asked for their prayers, and that if they had not had their mammo/check-ups...to please do so. One of my friends hadn't been for a mammogram for over five years (she is in her late fifties) and her sister had bc many years ago! She went for her mammo and thankfully all was ok. Two more friends followed up, one w/a biopsy....which was negative.
Given my family hx, you recommeded that I have genetics testing. Thankfully, I did. Although I am BRCA neg, I know to keep in touch w/your genetics dept., and continue to discuss other necessary options w/my oncologist. Jennifer Axilbund is also very supportive and gave me much time and information regarding my family genetics tweo weeks ago. She helped put things in perspective. It was a relief speaking to her.
You talked to me about perspective and going back to work. My heart was full w/gratitude after my surgery, and Debby pointed out that going back to work would feel different. It was different...there was much turmoil, and I was able to sort out necessary and unnecessary issues. Still it was difficult, but I was prepared.
I was originally referred to you by Dr. John Carey, my otoloaryngologist at JHUH . Unfortunately, I received the news that I had bc from the nurse in my doctor's office, w/little more than a report of the lab results and the recommendation to see some surgeons after hours. Since it was after hours and I didn't know what to do, I emailed Dr. Carey. He emailed back by 10:00 that night and recommended that I see Dr. Jacobs or Dr. Tsangaris, w/all of the contact information! Once again, a JHUH physician takes an extra step! Instead of being left out in the cold and anxious all night, I had a plan of what to do.
Struggling to make sense of what my lab report meant, I accessed the JHUH website and found Lillie Shockney's, Ask the Expert columns. I read fervently to try to "crack the cancer code" and make as much sense as I could w/limited information.
When you gave me literature at my visit, it was helpful (from NCI and Lillie's book).
You referred me to Dr. Rosson and I had a lengthy discussion w/his assistant, Courtney. The information they provided was invaluable, honest and straight forward. They provided REAL photographs of reconstructions and implant options. They were very understanding and respectful. I am sure they sensed my fear and apprehension. Knowing my medical history, and practical nature that it would take awhile to restore my strength, I decided on a double mastectomy, w/possible delayed reconstruction. They were nonjudgemental and supportive.
My follow up visits w/you were supportive and caring. Kyle was also helpful and very practical. You all understood my physical challenges and gave suggestions that helped me understand that reconditioning would take awhile, but I could do it. Even though the fatigue from surgery lasted quite awhile, especially when I went back to work, you answered my emails and phone calls to guide me in what I needed to do. I was able to address issues w/my primary care physician and oncologist. Kyle addressed my frustrations and fears w/understanding and factual information.
Debby set me up w/ a volunteer, Maureen. Maureen was suppportive and had a good sense of humor. I had just a few phone conversations w/her, but it made all the difference. You encouraged me to seek out a support group when I could and made some very good suggestions. I was less apprehensive when I went.
Debby suggested I come to a retreat. B/C of my husband's hospitalization in March, I was unable to make it, but have high hopes of attending one some day.
In summary, there is a specialness to all of you. It's almost too difficult to put into words. I know that you are at work everyday on the front lines of fighting cancer and are very dedicated, but take a moment to know that your confident, kind and caring manner, knowledge, brilliance, and utmost respect is remarkable. I will be forever grateful for every moment you spent w/me, whether it was for surgery, recovery, recommendations, emails, perspective, follow-up, guidance and support, website information, and/or referrals. It has made all the difference in my recovery. Although I faced cancer head on, I know that I am not alone, and truly have a team backing me up. Life can be, and is better. Regardless of the challenges that my family and I will continue to face, because of your care, I am inspired and have renewed strength and confidence.
I wish the very best to all of you. I wondered if you could forward my email to Kyle, Dr. Carey, Jennifer Axilbund, and Dr. Visvanathan as I have not been able to find their email addresses.
Again, thank you Debby, Dr. Jacobs, Dr. Carey, Kyle, Jennifer, Dr. Visvanathan, and Lillie (I've spent many hours reading the Ask the Expert column when I had a pressing question at the most inopportune time of the night...your counsel reaches far and wide!).
With Deep Appreciation and Gratitude,
I'm sure you've heard this before, but my husband and I were so reassured after going to the Breast Center! It was a heart warming experience for both of us. We felt someone really cared for how we were feeling and someone knew what we are going through. I hope that when this is over I can also give back.
I would like to compliment Sheila Saunderlin for going above and beyond the norm for Excellence of Service.
I'd had a hard time locating films in order to have a mammogram off site and before my insurance coverage ran out. With the clock ticking and more difficulties than there space to enumerate, Sheila went an extra mile (not to mention time) by coming in early, locating the records and hand delivering as I prepared to hop in our waiting car.
Incredible - I felt so cared for, safe and protected. Thanks to Sheila, and all the coordinated efforts she created.
I have been a patient at Johns Hopkins since April of 2006. I am a Breast Cancer survivor (15 yr survivor before it came back in 2006) and have had multiple surgeries for the cancer and reconstruction (double mastectomy/Diep flap, then SGAP). I have recently had my final surgery with Dr. Flores-only a couple of small procedures left. I wanted to let you know how blessed I have been to find the Breast Center at Johns Hopkins Dr. Flores has been wonderful to myself and my family. I made it clear in the beginning that my grown daughters were an integral part of my treatment, as they would be caring for me during the recovery process. Dr. Flores went out of his way with explanations and post-surgery treatment plans. He was available 24-7 by E-Mail and phone and there were times when we were concerned about healing etc and we were able to email photos of the problems with very quick responses from the doctor-either advising what we needed to do or bringing us in for a check of the problem-he never seemed put out by our questions, and always made himself available to allay our fears and concerns. He always has a smile for us when we come in and I just want you to know what an amazing doctor he is. After a year and a half I feel we know him very well and he has been a God-send to my family. We always let you know when things go wrong and I just wanted to send my appreciation to you and your facility for providing such a kind and caring physician. I know you are aware of what a fine doctor he is, but as my ordeal is ending I felt the need to let you know about our experience with Johns Hopkins and Dr. Flores. I live in WV so each trip involves a 5 or 6 hr (one way) drive and I don't regret the decision to drive the distance for the ultimate care I received. Thank you so much
It has been exactly one year since my surgery last 11/30 and I can't believe how fast the year has gone. You and Dr. Rosson will always be very special to me and I just wanted to let you know again how much I appreciate everything you did for me. Not a day goes by that I am not grateful for the reconstruction, Johns Hopkins and foremost Dr. Rosson and yourself. I am doing great and love them! Dr. Rosson wants to see the finished product so I will make an appointment for sometime early in the new year. I will never forget what you did for Robin; you literally saved her and we are both more grateful than you know. You cut the red tape for her and now she is one of my closest friends, only barely knowing her before fate brought us together! I hope you have a wonderful holiday season, and I wish you a new year filled with great health, time for yourself, happiness and prosperity! Most sincerely, Susy
Lillie, there are no words to express my gratitude to you for all your help during my journey. From my first phone call to you back in October you have been my lifeline. A few times in the middle of the night when I had nagging questions I would post them here online and very quickly receive the answers I needed. Of course the care at Johns Hopkins was spectacular and I was lucky to be able to travel there and receive my treatment. Dr. Tsangaris and Dr. Rosson are not only clinically excellent but have true compassion for the women they serve and it is evident in their work.
I know you service this board on your own time and I truly thank you for that. It is a place where women can go to find answers and feel support.
May God continue to bless you in your work.
Now that my treatment is completed I wanted to send a big thank you to my medical team at the breast center,. Making it through my treatment has by no means been an easy journey; however, having such a professional and caring medical team made all the difference in the world. I want to thank Dr. Tsangaris, Dr. Rossen, Dr. Wolff and Dr. Zellars for taking such good care of me. They are wonderful doctors and hold a very special place in my heart. I also want to thank Lillie for being my lifeline during treatment. She is truly an "angel". I am very happy that I chose to have my breast cancer treatment at Johns Hopkins. I don't think I could have been in better hands. Thanks again.
Elizabeth Montanez
Columbia, MD
Just a HUGE thank you note. I got an abnormal mammogram report on the day of my 42nd birthday. I was terrified. The mail man came
with a certified letter. What a way to wake up on a birthday. Once I opened it my world fell apart and I had no one to talk to and
thanks to God I found you. You gave me great information and today I just finished all my exams and I got a clean breast bill of
health. I was in the dark until i found your website. I will always be trying to help the cancer foundation and will be promoting
your site so women like me have an angel friend when there is no one else to go to...
I am the first one to ever get diagnosed on either side of my family
with breast cancer. Breast cancer is a taboo subject in the African
American community, largely because it usually means death. I felt so
alone and unprepared to handle the family inquiries of "what I did to
get cancer". I also had no point of reference of anyone with cancer to
know what to do, what to ask or how to feel. I am so thankful for your
responses and for John Hopkins in general. I am 2 years post treatment
and I feel great.I have started doing alot of fundraising for the ACS
and I even appeared in a calendar called "Faces of Breast Cancer"
created by the Circle of Hope to generate money for people that can not
afford treatment. I am July. I never would have felt as good post bc
if it had not been for your truth and guidance. I can honestly say I
must have posted 100 questions and I thank you from the bottom of my
heart for your 100 responses.
You are my angel.
Best regards and continued success.
I would just like to say thank you for having this site. I recently
had an abnormal mammo, negative u/s. Last week, had the total lump
removed with report today as a fibroadenamo. I was so worried even
though the surgeon felt it would be benign. This site really gave me so
much info that I felt more informed talking to the surgeon. Thank for
all you do. Hopefully this will also let others know not all abnormal
mammos are bad news.
Just wanted to say think you so much for the help you give. In response to my question in January this year, your advice to "gather
family together" meant that my sister was able to sy goodbye to all the people she loved, and also encouraged open discussion about
her end of life wishes. She died 2 weeks ago in peace with her family round her. Again, thank you-- and let's hope that oneday we
find a real cure for this awful disease that still affects so many.
Avon and JHU's Breast Center are wonderful resources. I can get straight answers from you (so very refreshing) and an expert review of my mammogram filmes (so reassuring) without leaving my home. more importantly, this format of Ask an Expert and the JHU online library have given me the knowledge to recognize when i need to ask questions, and the courage to insist on answers. Because of the Johns Hopkins Avon Foundation Breast Center, i now know I have help and options if and when I am diagnosed with breast cancer. It gives me a lot of hope and comfort. Thank you from the bottom of my heart.
Click here to view Thank you cards
My surgery at the Johns Hopkins Avon Foundation Breast Center was a very positive experience. I came into the
center vulnerable and scared. The staff went out of their way to reassure me. Thank you and your staff for all your help during this
scary time in my life.
God bless you for offering Ask an Expert. I have found so many answers to my questions that for a long time have been unanswered.
Ask an Expert provided me the information and peace of mind that I needed when my teenage daughter found a lump in her breast. thanks.
I was not familiar with inflammatory breast cancer until I went to your website and read about it. Your information truly saved my life. I was diagnosed and treated and am now doing well, something that I know doesn't happen to many women with this type of breast cancer. Thanks very much for you educational information and compassion.
I never expected to get an answer so quickly to my question when I wrote to Lillie Shockney at Johns Hopkins. She responded to me the same day and provided me help in getting the care I needed. thanks Lillie.
I recently underwent mastectomy with DIEP flap reconstruction at Johns Hopkins and the experience was far better than I ever would have imagined. My reconstructed breast looks great and the symmetry was better than I expected. What a fantastic team of doctors and nurses there.
I never expected to hear the words "you have breast cancer" but having been told this news I must say that Hopkins made the treatment the least traumatic emotionally and physically they could for me. Thanks everyone.
I honestly don't know where to begin to thank you and everyone at the Breast Center for all your support and encouragement during my whole experience with breast cancer. From diagnosis, surgery, and recovery the doctors and nurses at Johns Hopkins are to be commended. I especially want to thank the two wonderful "angels"- volunteers who took time to stay with me during my radiation injection for sentinel node biopsy and also stopped by to see me before I went into surgery to give me a comfort bag! Their kindness , great attitudes and just their true genuine support meant the world to me. God bless them.
I want to thank you, Dr. Singh. I am very happy and most pleased that you are one of the physicians on my team. I am very pleased with the results of my reconstruction! When I was first diagnosed with cancer I was very sad and frightened. I no longer feel this way, thanks to you, Dr. Tsangaris, Lillie Shockney, and Kyle Terrell and all of the wonderful people at Hopkins.
| |
- Debbie Nierintz
August 2003
|
Thanks and Praise! I chose to get a second opinion at Johns Hopkins after my diagnosis on the Eastern Shore. It was a great comfort to be given an appointment quite promptly at such a prestigious institution. Dr. Tsangaris was very thorough, explained what I needed to know very well, and inspired me with confidence that I was getting the best care and making the right decisions. He is an excellent doctor and surgeon whom I would highly recommend to anyone in my situation.
I feel grateful for the highly personal, superb care that I received from Dr. Tsangaris, Lillie, Kyle, Joan, Debbie and many others at Johns Hopkins! I knew that everyone was trying to do the best thing for me.
It is critical to have a support person like “Lillie Shockney” to aid the doctors. It was a blessing to have access to such an informative and loving person. She and Dr. Tsangaris made my experience so much easier that I could have ever imagined.
The care, knowledge, expertise and assistance I received from Lillie Shockney and her survivor volunteer at my side during my procedures was invaluable. Without their help, I would have been a total wreck. It was their support that I cherish. Of course Dr. Tsangaris also contributed to my comfort level along with Dr. Zellars. But most of all, thank you Lillie for being such an advocate and coordinator for the patient.
Johns Hopkins did a wonderful job on medical care. I feel I had the best surgeons and nurses.
I think Hopkins does an amazing job and I thing the first reason for that is Lillie. Her warmth, concern, knowledge and personal experience make her the perfect outreach person. When are you seeing so many specialists, to have one person to call for the “overall” picture and cotacts makes it much better. And Lillie does it all with humor and love as well. She is th most precious resource there.
I feel I received the best of care from Johns Hopkins Hospital. I felt confident from the first visit. I am very greatful for the care I received and will highly recommend Dr. Tsangaris.
Continue what you are doing. If a woman can have a positive experience dealing with breast cancer, I did. The doctors were professional, thorough and sensitive to my needs. The Breast Center staff and nursing staff made me feel special and that was very important during my treatment time. It helped me to be positive about my future health and that helped my family deal with my illness.
Johns Hopkins hasn't been consistently voted the #1 hospital in America for hype; they've earned every accolade. I'm a resident of Richmond, Virginia and my cancer battle began in March 2001. In April 2001, after consulting with two local surgeons, it was recommended that I undergo a lumpectomy with the standard chemo/radiation/Tamoxifen follow up. I read everything I could find on breast cancer and opted for a modified mastectomy instead. Don't discount your inner voices; they can keep you on the right path. My decision was correct, as the pathology report indicated additional minuscule cancers throughout the removed breast tissue that the mammogram did not specifically indicate, or at least the local radiologist could/did not identify at the time. I had thirteen lymph nodes removed, all of which returned with a "clean & clear" report and a positive Estrogen receptor status. After this surgery, based on the aggregate amount of cancerous mass (3.2 cm, Stage II), I underwent a four-month regimen of chemotherapy and will now take 20 mg of Tamoxifen daily for five (5) years. I opted to wait until after chemotherapy (August 2001) for reconstruction, because my focus was to remove the greatest risk to my life, meaning the immediate treatment of the cancer. Also, I was not satisfied with the limited options offered to me in Richmond.
That brings me to Johns Hopkins and this testimonial. I was interested in a specific type of TRAM flap procedure, which would use my natural tissue. My search ended when I found the Johns Hopkins Breast Center and Dr. Maurice Nahabedian, alias "Dr. Mo" to those of us who love him. I read the testimonials and made my decision to have the DIEP Flap procedure performed by this medical magician. . I emailed him and this extremely busy surgeon answered me within the course of a business day! Dr. Mo explained, with great detail and in layman's terms, what would be involved and what results I could expect with my delayed reconstruction. He said in some cases abdominal muscle (postage stamp size for FREE TRAM procedure) might be necessary if the blood vessel required for the DIEP procedure was not readily available from the harvested area.
My reconstruction surgery was originally scheduled for September of 2002, but a pre-surgery mammogram performed at the Breast Center of Johns Hopkins indicated a questionable area, so Dr. Mo recommended that I postpone reconstruction until a biopsy could be performed. The Johns Hopkins staff wrangled with my insurance company until they were successful in obtaining a pre-authorization for the procedure on the spot, (thank you Eunice Atkins & staff!). The extremely competent JH staff performed the biopsy with great consideration for my comfort during the procedure, and one of Lillie Shockney's volunteers (thank you Faye!) was with me to provide unsurpassed moral support. Results were fine. We re-scheduled my surgery. The DIEP procedure is not widely offered in the US, but Dr. Mo has performed it at Hopkins for the past three years. At the time of my surgery (October 2002), Dr. Mo had performed roughly 100 of the DIEP Flap procedures. According to Dr. Mo, I was one of three (3) cases he had seen where the blood vessel was right on top of the fat/tissue to be harvested. That meant an additional hour to the standard 5-hour operation to complete the required microsurgery to connect the harvested blood vessel to a recipient blood vessel under my arm. But it also meant, no abdominal muscle was affected, not even the abdominal membrane had to be disturbed/breached, due to the blood vessel's location! This shortened the recuperation timeline and pain management was also greatly diminished, very few pain killers needed! I stayed in the hospital for three (3) days, during which the vigilant nursing staff, along with their excellent janitorial staff (kept infection rate at 0%, due to daily swabbing of the entire room), addressed every need. I was walking around the ward the day after surgery. My surgery was performed on Thursday, one (1) drain removed on Saturday morning prior to discharge, and the remaining three (3) were removed on Tuesday during the follow up appointment! I went home to Richmond the same day! I stopped prescription pain medication within two days and Extra-Strength Tylenol was sufficient for the level of pain I experienced. Today, I can perform any task I like, due to no loss of strength. My new breast matches my remaining natural breast and I am back in my pre-cancer, standard bra! The nipple construction was 100% painless and the results, fantastic! The final step (areola tattoo) will occur sometime in May. I have a new, flat stomach, a wonderful by-product of the reconstruction. I strongly recommend this JH procedure to anyone who wants to be returned to normal, or better than normal, in my case.
In closing, I would like to say that Dr. Mo is the most considerate, nurturing, compassionate, talented, and totally committed medical professional that I have ever encountered in my 49 years! He also has a wicked sense of humor, a rare quality indeed in medical professionals, but one that can help you keep your sense of humor throughout your ordeal. He is AWESOME and so are all the members of his surgical team (thank you too, Dr. Swann!). Call his first lieutenant, Lynn Stoots (410) 955-9477 for an appointment. Be sure to consult the website newsletter, Artemis, and Lillie Shockney is a verbal archive with a support group of volunteer survivors who are worth their weight in platinum! Good luck to you and may God Bless You! If you wish to talk to me personally, Lillie Shockney has my phone number!
| |
- Bobbi E. Jeter
Richmond, Virginia
March 2003
|
I want to share all my positive experiences at Johns Hopkins Breast Center. I am a
Radiation Therapist and have been treating cancer patients for 19 years.
During the summer of 1999 I found out that I had breast cancer. I decided to
go to Johns Hopkins for my surgery, since they have specialists who are
breast surgical oncologists. Dr. M. Zieger and Dr M. Nahabedian performed my
surgery , both of whom I trust their expertise. They both answered all my
questions and explained their procedures to me. I found out that I needed
Chemotherapy because of a positive sentinel node. So I made an appt. with Dr.
Antonio Wolff a medical oncologist. Dr. Wolff is an excellent doctor . He
took much needed time to explain what the chemotherapy involved and which
regiment he would recommend for me because of my stage. Dr. Antonio Wolff
answered all my questions thoroughly. With every visit during chemotherapy
and now with my follow up appointments Dr. Antonio Wolff still spends Quality
time with his patients. He listens attentively with genuine concern for his
patients needs. Believe me I know because I treat cancer patients everyday at
my work. I am very pleased with Dr. Antonio Wolff, Dr Zieger and Dr.
Nahabidian's wonderful care. They made an unpleasant time in my life a more
pleasant one . I personally thank all of them.
My reconstruction did not start with Dr. Nahabedian (fondly known as Dr. "Mo"), nor the Johns Hopkins Breast Center. My first surgeon advised against a Tram/Flap procedure, and I had just had a hysterectomy, and felt that was enough. I chose door number two, immediate reconstruction with expanders and then implants.
From surgery to full expansion took five weeks, much faster than originally explained. As soon as I was fully expanded, one ruptured. Recommendations to complete the procedure were made. I felt uneasy about this. You might say I panicked.. I managed to find information on the Internet about a program relating to different types of implants at Johns Hopkins.
I was scheduled to be seen by Dr. Nahabedian. As the receptionist was making the appointment, she said "You will like him - he is very nice" she continued "good surgeon". This was positive information. My husband and I met with Dr. Nahabedian. I liked him, and he seemed understanding of what I had gone through. He made me feel at ease. I decided to continue
reconstruction with Dr. "Mo".
Surgery day - a nurse came by and introduced herself, and she asked "You're Dr. Nahabedian's patient?" "Yes". She went on, while looking at the paper work, "He is so nice and he does great breasts, you are going to be very happy". More positive information - anyone who had anything to do with this man had something nice to say. I liked him, but I had just met him. I now know that he is all those nice things and many more.
The reconstruction was not working. Expanders had been replaced, but would not hold. Dr. Nahabedian suggested it was time for the permanent implants. This type of reconstruction did not meet with my expectations. Big disappointment and I just could not shake my unhappiness. I felt like Humpty Dumpty. There is no fault here. Dr. Nahabedian did not start with me; he came in after the fact. I think he was shocked with my reaction, but he remained understanding, compassionate, and he listened sincerely. He truly wanted me to be happy.
After some discussion, a Tram/flap with "expandable" implants was recommended. Big doubt about those "expandable implants", and with the surgery I had originally turned down. But things are different now, it's been over a year, the body has healed and I have stopped smoking, a must for this type of surgery. "Mo" says, "this will fix everything". He was so positive and there was this reassuring look. I had to trust my gut and go with the surgery. Boy, was he ever right.. Instant gratification! I could not have been happier! The rest of the procedure, Mo calls "the fun part", is like icing on the cake. It sure makes for a pretty picture and a very happy husband.
I have been "Mo's" patient now for about a year and a half. I have seen his sense of humor, compassion, understanding and sincerity. He is good and the more he works his magic, the better you feel and the happier everyone becomes. A genuine person, this is why everyone speaks so well of Dr. "Mo".
| |
- Donna Biller
February, 2000
|
I am pleased to send along my heartfelt testimonial to Johns Hopkins Breast Center, and especially to Dr. Antonio Wolff.
On my first visit to Dr. Wolff, I was still in a state of shock after the diagnosis of breast cancer and the surgery which followed. I was greeted with warmth, caring and even a gentle sense of humor, which provided my first smile in weeks. I was told everything I had to know, but I think with the underlying understanding that I probably wasn't able to absorb it all and would ask questions at later visits.
The six months of chemotherapy went slowly, but routinely. From the personnel at the desk to the lab for bloodwork, to the chemo nurses, everything was handled in a friendly but very efficient and reassuring manner. I never found myself worrying that something would go wrong. Over all was Dr. Wolff or his associate checking out my condition prior to each treatment, and most importantly listening to any questions I had or any feelings I needed to vent.
If there is anything good that I can say about my having breast cancer, it was being lucky enough to have Dr. Wolff as my oncologist.
My hero is not a movie star, T. V. personality, politician or
astronaut. My hero is Dr. Antonio C. Wolff. He is a very knowledgeable,
kind and compassionate human being . As soon as I met him, I knew he would
also be a friend. I can not sing the praises enough of this wonderful doctor.
When I underwent my treatment at Johns Hopkins which involved
chemo and bone marrow transplant. My doctors were John Kennedy and Lawrence
Gardner who were wonderful throughout my treatment. Dr. Antonio Wolff came on
board shortly before Dr. Kennedy left Hopkins to return to Ireland. When Dr.
Kennedy told me that he was leaving and that Dr. Wolff would be taking over, I
was a bit disappointed and very anxious, but those feelings quickly disappeared
after meeting Dr. Wolff the first time. I knew I was fortunate to have had two
such gifted doctors, and now I feel truly blessed to have Dr. Wolff. He is
excellent.
When I was diagnosed in November 1998 with breast cancer my world fell apart,
or at the time, I thought that was what happened. What I have come to find out
through this life threatening experience is that I have met the most
professional, caring, knowledgeable people available to cancer patients. Never
once during my months of treatments was I ever kept waiting for an appointment
or felt rushed once I was with Dr. Antonio Wolff. The level of personal concern
is evident and genuine. Everything was explained in great detail, and no
question seemed too unimportant to be addressed.
What started out to be a negative part of my life was really positive;
to be blessed by Dr. Antonio Wolff and his staff. I thank God daily that Dr.
Wolff is a part of my life!
In May of 1996, I was diagnosis with Breast Cancer of the right breast. The treatment, due to the size of the tumor > 3cm and close to the chest wall, then was to have a modified radical mastectomy and chemotherapy which I did. The risk of my cancer returning was relatively low, however, three years later, March of 1999, my cancer returned manifesting itself through out my lungs and three areas of bone were also involved(jaw, sternum, and pelvic region).
I was completely devastated and depressed upon receiving this new diagnosis. I also realized that their was little or no hope for recovery/remission when cancer metastasizes to other parts of your body resulting in stage IV breast cancer. I returned to Johns Hopkins at Greenspring Station to receive chemotherapy again.At this time,
I met Dr. Antonio Wolff who immediately put my family and my fears at ease. It was Dr. Wolff's warm, caring, and compassionate nature that gave me this feeling of security.I saw Dr. Wolff for f/u
evaluation every 2-4 weeks for ten months after receiving 2-4 doses chemotherapy. During my evaluations, Dr. Wolff took a special interest and care in reviewing everything with me. HE explained everything such as test results, chemotherapy response,asked questions etc..WE planned the entire treatment plan in advance.If the current treatment was not working ,I knew the next course of action. Knowing there were alternatives for additional treatment kept my anxiety at a minimum. Information was presented in layman terms and my questions were answered before they were asked.
I could depend on Dr. Wolff to give me the best treatment available. I am grateful and so overjoyed inside that at times I cannot contain myself with the results of my cancer being in remission due to the Lord and Dr. Wolff's well thought out treatment plan and close evaluation of my treatment regime and test results. I cannot say enough about how pleased I am to have a doctor like Dr. Wolff.I have met and came in contact with many doctors over the years can truly say that Dr. Wolff
is the caring doctor I have ever met. If my cancer had not gone into remission,I would still have the same feelings for Dr. Wolff in that he is a doctor who genuinely cares and researches the best treatment for his patient.
| |
- Barbara A. Rogers
4 year breast cancer survivor
|
It is my pleasure to share my
experience as a breast cancer patient.
My initial surgery and reconstruction was done in my hometown and not at
Hopkins. I was most
uncomfortable with the results of the initial surgery which caused me to
decide on reconstruction. A bad idea! I had to be hospitalized for
approx..30 days because of massive infection and all that goes with it. All
the repair that was done was destroyed by the infection. To be brief I had
been told by three surgeons that they are afraid to operate on me to do any
more repair. I then had a hernia as a result of this last surgery so I
turned to Johns Hopkins Hospital and was referred to Dr. Maurice Nahabedian.
He had
no problem operating on my hernia and nine months later the reconstruction.
He was very professional and reassuring. I would not hesitate to refer him
to anyone in need of his services.
May I say again, Thank you, Dr. Maurice Nahabedian.
I have been a breast cancer patient at JHH since Feb. 1988 and my
experience has and continues to be nothing but the best.
In 1988, I was a patient with Dr. Gary Gordon and I have never
experienced a more wonderful friendship between doctor and patient
before as I had during the time I was under Dr. Gordon's care. I had
the utmost respect for and trust in him, and despite all the odds that
were against me having inflammatory breast cancer, I always asked for
Dr. Gordon's advice and then followed his suggestions as to the
treatment that he felt was best for me.
I never experienced sickness with my chemo treatments before and after
my mastectomy -- I always felt great. In 1989 I had a bone marrow
rescue done and I was blessed and fortunate enough to be in remission
for 10 years now.
In January 1999 my cancer returned in my bones and I was assigned to be
a patient with Dr. Wolff. I have been with him for a year now and again
I feel that Dr. Wolff is a very caring and wonderful doctor as well as a
good friend.
I have a lot of faith and trust in him and I have been very pleased with
his prescribed treatment for me thus far, which has been a 2 hour IV of
Aredia once a month, plus in Dec 1999 I began taking daily a hormone
drug called Femara. Once again, I have had no side effects from
treatment.
I have always had the most positive experiences with everyone associated
with Johns Hopkins Hospital, employees as well as doctors, and I cannot
speak highly enough of JHH for the wonderful treatment they have
provided for me, extending my life longer than expected.
Thank You and God Bless.
| |
- Victoria L. Livingood
Milford, DE
|
Cancer, a six letter word for someone else, not me. When I discovered a lump in my breast and was reassured by my friends that I had nothing to worry about, the furthest thing from my mind was cancer. After all, I had no family history, my parents, healthy in their seventies have not had problems, my grandparents lived to nearly a hundred, without every speaking the word, so surely my friends must be right-I have nothing to worry about. My husband was not so sure, but he is a hypochondriac. Don't smoke, don't drink, take vitamins, watch my weight, exercise routinely, have three healthy children and a wonderful family, am happy at home-I have nothing to worry about.
Well, I was wrong. Invasive ductal carcinoma, stage 2. Sounded like a second-generation foreign car. But it wasn't, it was a tumor, in my right breast--not a welcome visitor. Cancer, that six-letter word, had invaded my world and I was sure that after forty-six years, I would not make it to see forty-seven. The emotions were perfect textbook examples, from denial to depression to reluctant acceptance. Now what? Well, I was a regular patient at an HMO. Their doctors seemed to be competent, but what did I know? The hypochondriac didn't like them, but he doesn't like doctors anyhow. After three visits and being treated like a live cadaver (not a human being with a full range of emotions) I began to agree with my lovely husband. Together we concluded that it was time to go somewhere else. We had heard of Johns Hopkins' reputation and decided to find out what it was all about. However, we expected their doctors would be even less human than those at the HMO.
Dr Julie Lange, a surgical oncologist, was our first stop. Wow, very impressive. She took the time to clearly explain what was going on in terms that we could both understand. The professional, sincere and positive Dr. Lange told us about the Hopkins Team approach for treatment, and recommended Drs. Antonio Wolff and Deborah Frassica for chemotherapy and radiation therapy, respectively. My husband, by this time a self-proclaimed breast cancer expert, had a list of questions for them all. Next stop Dr. Wolff.
Is he a real doctor or a high school volunteer working at Hopkins? My husband quietly asked as we walked into his office. Young, cheerful and competent attributes were obvious after the first two minutes of consultation. But wait, there was more. The household breast cancer expert was about to engage in a series of questions-and he had the recent Medical Journal studies to backup his interrogation of the young Dr. Wolff. He has used this sort of interrogation tactic several times during our twenty years of marriage, and I was not looking forward to the inevitable embarrassment. To my surprise, however, what followed was anything but embarrassment. Dr. Wolff, as my retired military pilot husband would say, engaged. Dr. Wolff seemed to enjoy (or least handle very well) the questions and concerns. He was not only familiar with the Medical Journal articles my husband referred to, but also was able to nearly quote the conclusions drawn from the studies and suggested other similar studies that either supported or refuted the conclusions. In addition, his responses were always upbeat-the glass was more than half full-and easily understood. As my husband said after leaving his office, "the young looking Dr. Wolff is not a young doctor-I would follow him into war. Unfortunately, that is where we are-a war against this uninvited cancer."
The six months of chemotherapy that followed were not exactly enjoyable. Dr. Wolff and Carol DeClue (Nurse Practitioner working with Dr. Wolff) both knew this. When something went south, we called and they answered promptly. I am sure that they had heard the same doubting questions before, but they always listened patiently, remained realistic and positive, and provided me and my family with the essential support we needed to make it over the chemotherapy hurdle.
Our final stop will be radiation therapy. Dr. Frassica has the same caring and talented professional qualities as Drs. Lange and Wolff. She clearly recognized that the two-hour commute from our home to Hopkins every day for six weeks would be difficult at best, and she supported our decision and helped us make arrangements for treatment closer to home.
Could I have received better medical care somewhere else? I don't know, I'm not a breast cancer expert. But the self-proclaimed household expert doesn't think so. His position is, performance counts-not an array of diplomas hanging on the wall or "I'm a doctor" attitude (and you are not). Performance. It is just that simple. And the Hopkins Team (Drs. Lange, Wolff, Frassica, their support staffs) performed beyond my highest expectations. So, as my husband would forcefully say-"you received the best possible care for your breast cancer at Johns Hopkins."
Don't ever tell him this, but he is right!
"I set a high bar for the doctors I am willing to see on a continuing
basis. I want them to be completely present when they meet with me,
familiar with the details of my situation, knowledgeable about the many
changes underway in the field of cancer treatment, and straightforward
and understandable in how they communicate with me. I also want to
believe that any doctor I go to really, really wants to see me get
better and is willing to do whatever he or she can to make that
possible.
I am pleased to say that in every one of these instances, Dr. Wolff has
met or exceeded my expectations."
I'm delighted to have the opportunity to share with you my experience as a patient of Dr. Maurice Nahabedian (Dr. Mo). When I was diagnosed with breast cancer in February 1999 I was fortunate enough to live close enough to Johns Hopkins Hospital to have both the mastectomy and the reconstructive surgery performed there. With the international reputation for excellence enjoyed by Hopkins, I expected the best from both my surgeons, and I received it. But to my pleasant surprise with "Dr. Mo" came a bonus- humanity. From the first examination on through the expansion process and the final surgical implant, Dr. Mo consistently treated me with great kindness and concern. When I doubted the end result, it was his reassurance that he could reconstruct the missing breast in such a way that I would be able to wear my clothes and even a swimsuit without embarrassment. And he did, no small feat in a woman of 63 who has an ongoing battle with gravity!
Medicine is both an art and a science- the science is taught in the schools of medicine, but the art comes from within. When the two come together, we have that rare human being, a Dr. Mo who is both an excellent surgeon and a fine healer- truly a physician!
| |
- Phyllis Mutlu, LCSW-C
January, 2000
|
I am 32 years old and a breast cancer survivor of seven years in April of 2000. In August of 1998, I opted to have a bilateral mastectomy followed by immediate reconstruction and saline expanders. Everything should have been completed in March of 1999. Instead, I was over-expanded and lost my left side, and was having problems with my right.
I came to Dr. Nahabedian emotionally and physically distraught in April of 1999. He validated all my feelings, listened to me patiently, and offered his recommendation that would offer me the best finished result. Dr. Nahabedian had recommended a bilateral Free TRAM. He explained the surgery would be lengthy (this and failure being my biggest fears). He reassured me several times on both accounts. I was under about 10 ˝ hours. He kept in constant touch with my husband, family, and friends. He explained that it was taking longer because he wanted to be sure it was "right". This made my family feel really relieved. Dr. Nahabedian has a very positive, patient, and reassuring manner. He also is a wonderful teacher for you, as the patient, in what to expect afterwards, as the nurses and doctors, as well as himself, monitor you for the next 48-72 hours. Dr. Nahabedian also is very thorough in his teachings to the nurses and physicians who are assisting you during this very critical time span. This was seen by their patience and the time they took to monitor and note any changes in any way, as they explained his instructions.
Because of my prior experience, I was scared and yet this was the most rewarding and uplifting experience for me. I am so thankful for Dr. Nahabedian and his staff. I'm proud to offer my experience with him to help anyone in need of assurance.
| |
- Jole Cain
December 29, 1999
|
I am delighted to share with you my positive experiences at Johns Hopkins Breast Center and commend you on the wonderful, professional people who make up the "team" at the Center. I was diagnosed at another facility at the beginning of June 1999. As all other breast cancer patients experience, I too experienced shock, confusion, and anxiety. During the next few weeks, none of those feelings were relieved while I diligently set to work to "interview" various doctors in my local area for treatment options. Unfortunately, it was up to me to put a team of the various specialties together and that created even more confusion.
Finally, after realizing that I needed assistance, I went to the Johns Hopkins Breast Center for a second opinion. I can't begin to relate the relief I felt after just the first appointment. From the expertise demonstrated by my Oncology surgeon, Dr. Martha Zieger, to the caring and concern shown by the assistants in scheduling the surgery and subsequent oncology consult, I knew in my heart that this was the place for me to receive the best possible treatment available. Here I was not only allowed to be, but considered a member of the "team."
Despite all efforts it was not possible to remove the entire tumor doing a lumpectomy so we scheduled a mastectomy; but, not without a consult with a plastic and reconstructive surgeon. That brings me to Dr. "Mo" Nahabedian. Dr. Mo graciously told me that I would be a good candidate for the "free" TRAM or "free flap" reconstruction because I had excess tissue available to work with! Even though it was a long, extensive surgery and the recovery time longer, I chose this reconstruction over an insert. . Only at Johns Hopkins can a woman receive the "leading edge" reconstruction from a surgeon who performs this surgery on a weekly basis!
I surprised even myself in choosing reconstruction. I realized that my appearance is important to me and that it is OK for me to want to be as "normal" as possible. I deserve it! Even though the reconstruction is not fully complete (I'm scheduled for late this month) I am thrilled with the natural looking results! Nothing can prepare you for the loss of a breast and I don't want to mislead anyone into thinking that my newly reconstructed breast feels the same. But everyday it feels more a part of me. Not only is Dr. Mo a highly skilled, experienced surgeon, he is a caring person, wanting to assure my comfort and happiness with the results. I am grateful everyday for his skill and dedication.
The reconstruction allowed me to focus on healing and making it through the next step - chemotherapy - without being distracted by grief in losing a breast. I also want to say that my experience in the medical oncology department was very similar. From the oncologist, Dr. Wolff, the wonderful nurses tracking my progress and administering the therapies, to the administrative people at the desks, all treated me with great respect and professionalism. I recommend Johns Hopkins Breast Center to all my friends and family.
I consider myself very lucky to have found the Breast Center and am grateful that I have received the best and most current surgeries and therapies available. Thank you to all.
| |
- Nancy Green
7 Month Survivor! Jan 2000
|
My breast cancer was such a shock I didn't think I would survive the ordeal. I had had several serious surgeries over the years and I thought I had been through the worst, and I questioned God when I found out, why me? But, why not me? It has taken me awhile to accept what happened and if it hadn't been for Dr. Mo, I know my recovery would not have gone as well. I put my faith and trust in God and Dr. Mo to see me through this surgery and the reconstruction. He has a nice personality, a lot of patience, and takes the time to explain everything that he is going to do and why. I felt comfortable talking to him about my concerns with the surgery and I felt like he cares about his patients. I feel more normal, it looks natural and for my self-esteem, not having to worry about wearing the prosthetics everyday is a blessing for me. I cried every morning that I had to put it on. Even though my husband and family were there for support, I know my recovery is better with the reconstruction of my breast. I can talk about the breast cancer with strangers, co-workers, and friends. I have planned to do volunteer work with my church to help other women.
I feel like the reconstructive surgery gave me my life back and I am happy. I have a more positive attitude about life and I thank God that my life was spared and I am still here. As the result of my experience with Johns Hopkins Hospital and Dr. Mo, I would highly recommend both to anyone who needs a specialist or a professional in a certain field of medicine.
I first met Dr. Nahabedian shortly after my diagnosis of breast cancer in
September 1998 while I was still deciding what type surgery I would have.
Anyone going through this experience knows how overwhelming you feel with
all of the information you are given to process. I wanted to meet a breast
reconstruction surgeon before making my decision. When I left that
appointment with Dr. Nahabedian my decision was made. I just felt he was
the right one. Dr. Nahabedian made me feel as if I wasn't just another
surgical case, that I wasn't just a "breast" but a whole person. He has
always been willing to listen and explain, both in the office and prior to
and after each surgery. To me plastic surgery is an art form as well as
expert medical technique. I believe the work of "Dr. Mo", as he is
sometimes called, belongs in The Metropolitan Museum of Art.
When faced with a second incidence of breast cancer, I deliberated quite awhile before making the decision to have bilateral mastectomies. It didn't take long, however, to recognize my need for immediate breast reconstruction.
My introduction to Dr Maurice Nahabedian, the man who would be creating my new breasts, was shared by a dear friend who had experienced breast reconstruction just one year earlier. Her presence was comforting to me, but would my surgeon understand my need to have her there? In just a few minutes the three of us were sharing information without any barriers. Dr Nahabedian wasn't just tolerant of my friend's presence, he seemed to find it beneficial also.
To receive medical treatment at one of the country's premier institutions is in itself awesome. Dr Nahabedian's surgical skills were never in doubt; his dedication and sincerity became apparent right away. That, to a cancer patient, means so much. Knowing that Dr Nahabedian is trained to perform the most innovative surgical procedures, knowing that he can present the patient's choices clearly, and knowing that he gives attention to detail in the follow-up phase make it easy for me to recommend him without reservation.
To those who are newly diagnosed and considering breast reconstruction, I am available to answer any questions you may have. You may obtain my number from the Breast Center. To Dr Nahabedian, my sincere thanks for a job well done.
"I cannot explain my gratitude for Dr. Nahabedian in a few words. My first blessing came by entering Johns Hopkins for a consultation. Dr. Paul Manson examined me and said I was a "prime candidate" for a new procedure called a TRAM flap. His specialist to perform this flaps was Dr. Maurice Nahabedian, also known by his patients as 'Dr. Mo.' I thank god every day for Dr. Manson's recommendation of Dr. Mo. He is a very caring, honest, upfront and thorough doctor. A wonderful individual! Several friends have asked... 'Would you go through it again?' My answer... 'if Dr. Mo is my surgeon and he is assisted by his wonderful and caring staff- the answer is a definite YES!'"
"A little over two years ago (in 1997), I had a double mastectomy followed by immediate reconstruction- TRAM flaps- by Dr. Maurice Nahabedian , also known as Dr. Mo. Leading up to the surgery were several appointments to become familiar with the procedure. Never once during the pre-surgery preparation did I feel rushed or pushed to go in any direction in which I was not comfortable. Dr. Mo spent as much time with me as I needed. He was thorough and informative and sensitive to the emotional turmoil I was experiencing at the time. From the first day post surgery I knew I would be pleased with the reconstruction and to this day still feel the same way. Perhaps the best testimonial to Dr. Mo is from my oncologist, here where I live. One year after the surgery I went for a check-up and my doctor looked at my breasts and said he was "in awe" of the reconstruction. He said that he had 'nevr seen such an impressive surgery and would not hesitate to refer his patients to Dr. Mo.' He admitted that up that point he hesitated to recommend reconstruction because of the end result being less than desirable. In the small surgeries that followed the major reconstruction, Dr. Mo never altered his professionalism in any way and still showed sincere caring and sensitivity. For me, he is a blessing. He took me apart and put me back together, in some respects better than before the cancer- Dr. Mo is a gifted man. I feel I am privileged to have benefited from his talents."
"I am the daughter of the most wonderful mother that any person could be blessed with and her name is Donna Salathe. We had found out that she had developed breast cancer last year and that was the most devastating news I had ever heard in my life. My mother being the perfect picture of health I just did not understand. My stepfather, Bob, promised that my mom would get the best care that anyone could provide. And he did and found the greatest doctors at Johns Hopkins. I guess that is where Dr. Maurice Nahabedian (Dr. Mo) comes in. I have never had the pleasure of meeting Dr. Mo but I can tell you that Dr. Mo help make my mother the whole person she used to be. The loss of her breast and the loss of her hair just tore her apart and I hated to see her such a mess.
But thanks to Dr. Mo and the reconstruction my mother now feels like a whole person again. And I give thanks everyday to God for letting my mother stay on the earth and to the gifted hands, as my mom would say, of 'the wonderful Dr. Mo.' Last Christmas (1998) was heartbreaking and very tearful and filled with sadness now this year is different I have my mom and my best friend again. I can't imagine life without her and all those that know her feel the same she is truly an angel. I want Dr. Mo to always know that my mother talks so highly of him and his staff and the great care she received.while there at Hopkins. The caring staff remained wonderful even after she came home. Thanks to the wonderful team at Hopkins, I hope to have mom for many many more Christmases."
"After my suspicious mammogram, biopsy and diagnosis, I picked myself
up off the floor and my husband and I began the job of educating
ourselves about breast cancer and the various options available to
combat it. I had made an appointment through the Hopkins' Breast Center
with Dr. Julia Lange even before I had the biopsy, planning to cancel if
the news were good. It wasn't.
We met with Dr. Lange, my surgical oncologist, and began the series
of interviews and consultations with doctors in both radiology and
plastics. Decisions, decisions...whether to have a lumpectomy and
radiation? or a mastectomy? or a mastectomy with reconstruction, either
immediate or later? Survival rates, recurrence rates, recuperation
rates all entered into my final decision: mastectomy with immediate
TRAM flap reconstruction. Peace of mind began to return once that huge
decision was made.
Then I began my relationship with a wonderful man, Dr. Maurice
Nahabedian, a.k.a. Dr. Mo. He explained that the surgery would be
lengthy and both he and Dr. Lange anticipated a good outcome for me. I
was in good physical shape, didn't smoke and had lots of belly fat.
Hopkins' pre-op procedures proceeded and finally, at last, the day
of surgery arrived. Recovery was uneventful, and not particularly
painful ( except that darn coughing the pulmonary people insisted upon!)
and blessedly swift. I was proud of my new breast, which didn't look
too much like a breast then, but does now. My stomach was gone too.
Dr. Mo, Dr. Lange and their teams took good care of me and anticipated
any potential problems before they became major concerns. The nursing
staff was kind and supportive, as were the occupational and physical
therapists.
After release from the hospital four days later I gladly went home
to recuperate. Drs. Lange and Mo saw me three or four times over the
next several weeks to remove drains, and for general surgical checkups.
Dr. Mo also ordered sessions with our local p.t. agency and I got
permission to attend the local YMCA's aquatic arthritis stretching
class. Dr. Lange shared the wonderful news with me that no lymph nodes
were involved and that my oncologist would probably recommend tamoxifen
and not a full blown chemo regimen. And so I stretched and walked and
swam and slept and ate and healed.
Seven weeks after surgery, my husband and I boarded our sailboat and
headed south, down the intracoastal waterway to Florida, where we spent
a fantastic winter.
I am sure I made the right decision for me. i.e., a mastectomy and
TRAM flap reconstruction. And I appreciate to this day the kindness and
care given to me by the doctors, nurses and staff of the Johns Hopkins'
Breast Center.
I also appreciate the opportunity to be one of Lillie Shockney's
Survivor volunteers. Now I can talk with other newly diagnosed women
and try to allay some of their fears and apprehension. It is wonderful
to be able to " give back" in some way, and to share my success story
with others. I am walking proof that early detection pays off in a big
way."
"For several years I have traveled 100 miles (each way) to get my
mammograms at The Johns Hopkins Breast Center. Some of my friends want
to know why I would take a day out of my life and travel 200 miles when
I could have it done closer to my home.
At the JHH the films are read immediately so that when I leave, the
doctor has already told me what he/she found on the mammogram. Not
waiting for a report by phone several days later is worth a great deal
more than the time it takes to drive farther. Knowing that day whether
or not I have cancer gives me complete peace of mind. I would recommend
to anyone that she have her mammograms performed at The Johns Hopkins
Breast Center."
"It's probably no surprise that being diagnosed with breast
cancer at the age of 35 was truly the worst thing that has ever
happened to me. But my experience at the Johns Hopkins Breast
Center truly was the bets medical experience I've ever had.
I Think many women fear that if they go to a world-class teaching
hospital like Hopkins, that they will become a 'number' and lose
the personal attention that you need with a cancer diagnosis.
I found the opposite to be true. Everyone I came in contact with
treated me as an individual, and knew every detail about me and
my illness, and did everything they could to make my treatment
as comfortable and successful as possible. For me it was the best
of both worlds- personal attention and the peace of mind of having
been treated at the best hospital in the country."
| |
Cindy Geoghegan
President, the Maryland Chapter of the Susan G. Komen Breast Cancer Foundation
|
"I am so grateful that the Johns Hopkins Breast Center exists.
Every step of my experience, from the mammogram being done through
surgery and chemotherapy, to becoming a breast cancer survivor
volunteer has been facilitated by wonderful health care providers.
I don't want anyone to think that this is easy. This experience
is very difficult, but being in the hands of the skilled and caring
medical professionals of the Johns Hopkins Hospital is reassuring,
comforting, and soothing. The Johns Hopkins team is responsible
for a well-traveled path to Breast Cancer Survival."
" I felt very confident with the doctors and nurse taking
care of me at the Johns Hopkins Breast Center. I can feel the
love and concern my doctors and nurses had for me. I've been a
breast cancer patient at Hopkins since 1993."
| |
- Comments from a patient surveyed in 1997
|
"I have received excellent care at the Johns Hopkins Breast
Center. I'm very impressed with the medical oncology team who
takes care of me. I had a stem cell transplant and am doing well."
| |
- Comments from a patient surveyed in 1997
|
" Hopkins does a wonderful job! We went to Hopkins because
we weren't getting enough information from another hospital where
I had been seen. I like participating in the decision making about
my care and treatment. Excellent program!"
| |
- Comments from a patient surveyed in 1997
|
" If I had to do it over I'd make the same choices again
and choose Hopkins. I had about as pleasant an experience as one
could have having been diagnosed with breast cancer. I chose to
be an ambulatory surgery patient and that worked out well for
me."
| |
- Comments from a patient surveyed in 1996
|
" Great program, well run. Instructions post- surgery anticipated
all of my questions. A great experience under the circumstances."
| |
- Comments from a patient surveyed in 1996
|
"I was very impressed with my care at Hopkins. I had been
to other facilities first and am glad I chose the best."
| |
- Comments from a patient surveyed in 1996
|
" Having the opportunity to talk with a breast cancer survivor
right away after my confirmed biopsy was wonderful. The educational
information I was provided really helped me to understand my situation
and helped me to gain control of my life back. Thanks for doing
a wonderful job."
| |
- Comments from a patient surveyed in 1998
|
" Thinking back on my mastectomy done in February 1998, the
overall feeling I have is one of warmth and concern of the total
staff before, during and after surgery. It left me with the feeling
of being among 'family." Even at my advanced age of 86 years,
I did not have to remain in the hospital after surgery and the
aftercare received from the Johns Hopkins Home Care nurse who
visited my home that evening and the next morning added to my
feelings of security. I knew all was well. The visit to the Breast
Center before surgery for instructions was helpful in alleviating
fear of the unknown- all details were anticipated for me.
Of course, as expected, the surgery was skillfully done; and the
procedure was over very quickly with no residual reaction from
the anesthesia and minimal pain. The team was warm and concerned
both for my welfare and that of my daughter afterward. Although
never a pleasant experience, surgery was made as unstressful as
possible. I remain impressed and thankful."
" Trying to make the decision about breast conserving surgery
verses mastectomy was a challenge for me. Having the opportunity
to talk with four breast cancer survivor volunteers was of great
help. I was connected up with someone who had had a lumpectomy
with radiation therapy, someone who had had a mastectomy without
reconstruction, someone who had a mastectomy with implant, and
someone who had a mastectomy with TRAM flap. All four women called
me the same evening, which was the same day I contacted the Breast
Center requesting to utilize their survivor volunteer services.
Speaking with these women and learning how they each made their
surgical decision greatly aided me in being to confidently select
the option best for me. Your program is wonderful. Thanks for
being there!"
| |
- Comments from a patient surveyed in 1998
|
|