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Breast Center Home > Library > Informational Sources

 
Informational Sources

The Johns Hopkins Breast Center Web Site
http://www.hopkinsmedicine.org/
This web site contains information about the various services offered at the Johns Hopkins Breast Center. There is also a quality of care survey that we invite women across the country to complete. The site provides educational information, support service resources, information about how to make an appointment with us, case conference examples for health care professionals, events and updates about the Breast Center, and other special features. This site was the recipient of two national awards from the National Consumer Health Information Center in 1998 for excellence in patient education information.

Related Links:

 Information about Johns Hopkins University
 Department of Surgery
 Department of Oncology
The Cancer Information Service of the National Cancer Institute
1-800-4-CANCER
Internet address: http://www.cancer.gov/newscenter or you can access their breast cancer information through the Breast Cancer Clearinghouse who has imported in their information at the following web site: http://www.acor.org/
This organization provides information about the all types of cancer including excellent information about breast cancer, what it is, how it is treated, and where various treatment options are provided. They will mail you information written in laymen's terms within 24 hours of you placing a call. The staff are personable, very knowledgeable and helpful. They are grant funded by the National Cancer Institute. There are two internet addresses listed above. The first is the general NCI site; the second is a special section I found that provides you detailed information specifically about breast cancer, its cause and treatment. Their regional office is located at Johns Hopkins. That specific address is below:

    CIS Regional Office
    Johns Hopkins Oncology Center
    550 N. Broadway, Suite 300
    Baltimore, MD 21205
    1-800-4-CANCER


American Cancer Society
1599 Clifton Road, NE
Atlanta, GA 30329
1-800-ACS-2345
Internet address: http://www.cancer.org/

This organization will send information to you on treatment, detection, and prevention as well as provide you connections with your local chapter of the ACS in your immediate area. They also offer three special programs for breast cancer patients:

Pamphlets about breast cancer treatment, causes, the impact the disease has on a woman physically and emotionally and other information pertinent to women newly diagnosed or facing a recurrence of the disease. These documents are free of charge to callers requesting one copy of the materials.

Reach to Recovery is a program operated by volunteers who have been breast cancer patients themselves. They have completed treatment at least one year ago and attended a special training program designed to teach them how to provide support to women newly diagnosed. Volunteers are "matched" with new patients so that the Reach to Recovery Volunteer you speak with is someone who has had the same type of breast cancer as yourself, similar cultural background, and same treatment. Speaking to someone who has had the same treatment that you are to have can be very helpful. It is ideal to talk with someone who received their treatment at the same institution that you are planning to go to since there are variations in treatments/procedures as I've mentioned before.

CanSurmount and I Can Cope are general programs offered by this organization to unite volunteers, patients with cancer (and their families), and health care professionals in providing educational and emotional support.


Glass of Grace
Internet address: http://www.glassofgrace.com/
Betweenus.org - Affinityfilms
Based in Anchorage, Alaska
Phone: 1-888-353-HEAL or (4325)
Internet address: http://www.betweenus.org/
Email address: mary@betweenus.org

The Between Us First Aid Kits for Your Heart and Soul have been created by long term breast cancer survivors to provide support, mentorship and comfort during the initial crisis period for women newly diagnosed with breast cancer, a time we found to be one of the most difficult periods of treatment. This kit includes a video which is "like a breast cancer support group in a box". It's the "girlfriends' inside guide to coping with the crisis of a breast cancer diagnosis" and is "filled with as much humor and inspiration as practical advice". Emotional support for breast cancer patients is critical to being able to cope. You've got your medical team---now let's work on the other half of your healing team! The perfect gift for a loved one facing a breast cancer diagnosis crisis. Show her you care about her future - by giving her mentors for inspiration. Join the 6,000 women before you who have benefitted from receiving a "Between Us First Aid Kit for Your Heart and Soul".


HealthTalk
Internet address: http://www.healthtalk.com
HealthTalk is a trusted, respected information resource for patients and caregivers facing serious diseases and health conditions and the medical professionals who treat them. HealthTalk® has a 20-year track record for reaching, informing and empowering millions of people and providing them with the most comprehensive information on managing chronic illnesses effectively.


Y-ME National Breast Cancer Organization
212 W Van Buren Street
Chicago, IL 60607
1-800-221-2141
Internet address: http://www.Y-ME.org
This is a national organization designed also to provide support to women diagnosed with breast cancer. They also distribute literature about breast cancer treatments. It is staffed by breast cancer survivors who are volunteers. Local chapters also " match" trained breast cancer survivor volunteers with newly diagnosed women seeking support and information as they begin their treatment. The volunteer stays in touch with them throughout their entire treatment program if desired.


The Susan G. Komen Foundation
Occidental Tower
5005 LBJ Freeway, Suite 370 LB74
Dallas, TX 75244
1-800-IM-AWARE
Internet address: http://www.komen.com

This is a national volunteer organization seeking to eradicate breast cancer as a life-threatening disease, working through local chapters and the Race for the Cure events in more than 60 cities. The Foundation is the largest private funder of breast cancer research in the US. The Komen Alliance is a comprehensive program for the research, education, diagnosis and treatment of breast disease.


National Breast Cancer Coalition (NBCC)
1701 L. Street
Washington, D.C. 20036
202-296-7477
Internet address: http://www.natlbcc.org
Formed in 1991 with more than 140 organizations representing several million patients, professionals, women and their families and friends, NBCC has a significant impact on general awareness about breast cancer. They also have a major influence on public policy.


The Wellness Community
2716 Ocean Park Boulevard, Suite 1040
Santa Monica, CA 90405
1-310-314-2555
Email address: TWCNATL@aol.com
This program has extensive support and education programs which encourage emotional recovery and a feeling of wellness for people battling all types of cancer. All services are free. Their headquarters address is listed above but there might be a local chapter in your immediate area now. With breast cancer effecting more than 180,000 women a year the Wellness Community has taken the time to develop special programs exclusively for women with breast cancer.


Mothers Supporting Daughters with Breast Cancer (MSDBC)
c/o Charmayne Dierker
21710 Bayshore Road
Chestertown, MD 21620-4401
1-410-778-1982
Internet address: http://www.mothersdaughters.org/
Email address: msdbc@dmv.com
This national non-profit organization was founded in March 1995. It is designed to provide educational information about breast cancer treatment and emotional support to mothers who have daughters battling breast cancer. The program connects a mother up with a mother volunteer who has already had a daughter diagnosed and treated with breast cancer. She provides her emotional support and guidance how to be more helpful to her daughter from point of diagnosis through to completion of treatment. The o rganization also has a "Mother's Handbook" and "Daughters Companion Booklet" which provides some constructive suggestions how a mother can be helpful to her daughter during such a medical crisis. All material are provided free of charge. The organization was created in recognition that a mother feels helpless when they learn that their daughter has been diagnosed with breast cancer. A woman needs as much support as she can get when she learns she has breast cancer, including support from her mother. Her mother may be too distressed to provide constructive support however which can negatively affect her daughter. This program provides the needed support to assist the mother in being able to cope herself and in turn provide support to her daughter. A mother does not necessarily have to a biological mother -- any woman who is fulfilling such a support role qualifies.


People Living With Cancer
American Society of Clinical Oncology
1900 Duke Street, Suite 200
Alexandria, Virginia 22314
703-797-1914
703-299-1044 (fax)
Internet address: www.cancer.net
People Living With Cancer, the patient information website of the American Society of Clinical Oncology (ASCO), is designed to help patients and families make informed health-care decisions.


The National Coalition for Cancer Survivorship (NCCS)
1010 Wayne Avenue, 5th floor
Silver Spring, MD 20910
1-301-650-8868
Internet address: http://www.canceradvocacy.org
This organization raises awareness of cancer survivorship through its publications, quarterly newsletters, and education to eliminate the stigma of cancer, and advocacy for insurance, employment and legal rights for people with cancer. NCCS facilitates networking among cancer organizations, serves as an information clearinghouse and encourages the study of cancer survivorship. On a national level they provide public policy leadership on legislation, regulatory an financial matters and promotes responsible advocacy among national organizations.


 


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educational grant provided by Avon.

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