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Johns Hopkins Avon Foundation Breast Center
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Survivorship Care Issues
Questions surrounding survivorship and life after cancer.
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 Asked: 2/19/2018 65yojust diagnosed with 5mm grade1, stage 1a, ER+, PR+, HER2-, KI67neg(8%) breast cancer in the upper inner quadrant of my right breast.
 Asked: 2/8/2018 Dear Lili I had a history of grade 1 stage 1 breast cancer 3 years ago..
 Asked: 2/7/2018 Diagnosed with tnbc stage 1 grade 3, 1.3cm no nodes.
 Asked: 2/6/2018 When is the CA125 lab test used for breast cancer?
 Asked: 2/6/2018 What is the percentage efficacy of tamoxifen in estrogen positive breast cancer in clinical trials? What is the percentage efficacy of aromatase inhibitors instead of stone
 Asked: 2/2/2018 the JH Breast Center was recommended to me by MSK where i was in a Breast Cancer Survivor-ship Program the past several years which included...
 Asked: 2/2/2018 What happens to patientís who canít tolerate the aromatase inhibitors for estrogen positive breast cancer? Are there long range survivorís without AIís?
 Asked: 2/1/2018 I am 6 years cancer free, 65 years old, stage 1, estrogen positive breast cancer.
 Asked: 1/30/2018 Dear Lilie Im following up with you on my previous question between night sweat and one elevated liver enzyme.. I''ve done the liver ultrasound as my oncologist...
 Asked: 1/28/2018 Dear lilie Concerning my previous question about my night sweat..
 Asked: 1/26/2018 Dear Lilie I just need to report my case to you..
 Asked: 1/22/2018 Dear Dr.: I recently had my survivorship meeting in which my report said my ki-67 was 40%.
 Asked: 1/19/2018 Is there information available that shows the incidence/likelihood of breast cancer spreading to other parts of the body if it is found in 1-3 axillary...
 Asked: 1/16/2018 Pre breast cancer my OB/GYN handled my breast exams.
 Asked: 1/10/2018 If tnbc recurs but not in organs are you always stage 4?
 Asked: 1/8/2018 Hi, sentinel lymph node removal and mastectomy in June of 2013 (clear lymph nodes).
 Asked: 1/2/2018 Hi I had a wide incision surgery to remove 3idc tumour a year ago(13mm,10mm and3 mm) at time I had been keen to have mastectomy...
 Asked: 12/30/2017 I am 3 1/2 years out from stage 1 tnbc: 1.4 cm tumor, no node involvement, clear margins, bilateral mastectomy, 4 rounds of...
 Asked: 12/28/2017 The patients less than or equal to 40 years of age are survived longer than patients above 40?
 Asked: 12/28/2017 A Ki-67, cell proliferation rate was never done on my pre-op core biopsy and my surgical lumpectomy sample.
 Asked: 12/25/2017 I was diagnosed with a 3.2 centimeter invasive ductal carcinoma, ER positive 95%, PR negative, HER 2negative, 0/2 nodes, and no lymphic vascular invasion
 Asked: 12/22/2017 Hello. My mother was diagnosed with stage 2 tnbc about a year ago when she was 49.
 Asked: 12/21/2017 For TNBC patients, is it better to be BRCA negative? I thought I read that those who were BRCA NEG responded better to chemotherapy.
 Asked: 12/18/2017 Diagnosed in 05/2016 at age 65 with a 2 cm TNBC tumor (DCIS/Stage 1/Grade 2)in right breast with apocrine features (negative for androgren receptor &...
 Asked: 12/15/2017 Is Breast Cancer Index accepted as an accurate tool for deciding to continue aromatase inhibitors for Er+ and PR+ IDC for beyond the first five...
 Asked: 12/7/2017 More about earlier question about recurrence risk for 1.7mm IDC w/tubular features, Ki67 1-2%, age 59.
 Asked: 12/6/2017 I am almost 2 years out and was diagnosed at age 35.
 Asked: 12/6/2017 Further to my earlier inquiry (17mm IDC w/tubular features, 1/5 nodes SLNB, Ki67 1-2%), it is Stage IIa, grade 1, age 59.
 Asked: 12/4/2017 When my Onc tells me there is a 13% chance of recurrence while taking Letrozole, does that mean the recurrence would be the same kind...
 Asked: 12/1/2017 Hi lovie, almost 5 yr DUCTAL bc.survivor.
 Asked: 11/27/2017 Stage 1 TNBC -after completion of 4 AC, 12 Taxol and radiation, what should the follow up treatmen/ testing be? I have read about CDK 4/6 inhibitors.
 Asked: 11/26/2017 I asked if tnbc was going to recur how soon it usually does.
 Asked: 11/26/2017 With slightly elevated Alp of 157 And apparently this is coming from bone Stage 1a tnbc, finished chemo end June And rads Aug.
 Asked: 11/25/2017 Stage 1a tnbc.
 Asked: 11/25/2017 I am 2.5 years from TNBC Stage 2A diagnosis and 2 years out from last chemo.
 Asked: 11/25/2017 Hi Lillie, Have any Johns Hopkins oncologists lowered medication doses for aromatase inhibitors or biphosphinates for the very small adult patients? I had severe side effects with...
 Asked: 11/25/2017 One last question..could high levels of vit d3 cause a rise in alkaline phophates? Just trying to find a plausible reason for elevation.
 Asked: 11/22/2017 I wrote earlier.
 Asked: 11/21/2017 Your answer of kidney disease because of slightly elevated phosphate levels.
 Asked: 11/21/2017 T.v.,stage 1 (1.2cm), Neg nodes Completed 4 AC and 12 taxol and 20 rads 3 month check up.
 Asked: 11/6/2017 With BC month just ending, I listened to a powerful speech made by a celebrity on behalf of metastatic BC at a large benefit.
 Asked: 11/3/2017 I have osteoporosis per bone density before aromatase inhibitors for breast cancer.
 Asked: 10/27/2017 Tnbc stage 2, Neg node Mastectomy, and complete pathological response.
 Asked: 10/26/2017 Diagnosed two years ago with grade 1stage 1a.
 Asked: 10/26/2017 I''m stage 1 tnbc. Just completed all treatment.
 Asked: 10/26/2017 I have received a mastectomy, chemotherapy, and radiation for a stage 2b, grade 2 ILC and developed inflammatory arthritis post chemo.
 Asked: 10/22/2017 How do signs and symptoms of costochondritis differ from sternal and/or rib junction mets? Hx St2B w/isolated supraclavicular recurrence (does that make it St3 now?) 18...
 Asked: 10/20/2017 My mother was diagnosed with breast cancer.
 Asked: 10/20/2017 Hi there I am 9 months past diagnosis for idc,had a oncotype of 11 ,so had radiation now tamoxifen,at the time was very happy not to...
 Asked: 10/18/2017 Dx 5/2012 IDC stage 2B, 2 nodes, no mets...Lumpectomy, Chemo, Rad''n.
 Asked: 10/16/2017 I am er/pr+ and have been taking letrozole for a month now.
 Asked: 10/15/2017 I am ER/PR/HER2+, lumpectomy,chemo and rads, Arimidex, 2 years out from last Herceptin tx.
 Asked: 10/12/2017 Hi Lillie, can a medical oncologist know if there is liver mets by doing physical exam of the liver and abdomen..Thank you.
 Asked: 10/2/2017 I''m 2 1/2 years out of exchange surgery after BMX.
 Asked: 9/27/2017 My original pathology report was: Ductual carcinoma in situ, high grade solid type.
 Asked: 9/27/2017 I just received my pathology report from my lumpectomy for tnbc.
 Asked: 9/21/2017 Hi Lillie, first I would like to thank you from bottom of my heart...for your help and your time..was diagnosed with dcis in March 2016...
 Asked: 9/20/2017 Hi Lillie. I just went for a check up and my alk phos was elevated...127.
 Asked: 9/20/2017 Is there new studies that discuss the recurrence of TNBC in the breast after a lumpectomy? I am coming to the end of my chemo...
 Asked: 9/19/2017 Thanks. In relation to my previous question: " I was diagnosed with bilateral bc at 42 (pre-menopausal), IDC, T1cN1M0 in one breast and DCIS in the other breast.
 Asked: 9/17/2017 I was diagnosed with bilateral bc at 42 (pre-menopausal), IDC, T1cN1M0 in one breast and DCIS in the other breast.
 Asked: 9/15/2017 Hello. My mother was diagnosed with stage 3 triple negative breast cancer (chemo drugs: adriamaycin, endoxan and taxol).
 Asked: 9/13/2017 Thank you in advance for all that you do.
 Asked: 9/9/2017 2 years after 4AC & 12 Paclitaxel chemo cycles, FOOT neuropathy side effects are getting worse instead of better.
 Asked: 9/6/2017 What is the recommendation for number of years to see your surgical oncologist after lumpectomy for stage 1a BC.
 Asked: 9/2/2017 Hi. I was stage 1, Er+, Pr+, HER -.
 Asked: 8/31/2017 Hi Lillie. Diagnosed at 49 in December of 2006.
 Asked: 8/28/2017 My mother almost finished her radiation therapy.
 Asked: 8/22/2017 Hello. My mother was diagnosed with triple negative ductal carcinoma at the age of 49.
 Asked: 8/15/2017 Hi my mother is finishing radiation August 30th, and did not need chemo as her stage 1b idc er pr+ Her 2 -, seemed...
 Asked: 8/9/2017 Is the CA 15-3 test standard care for following someone with breast cancer.
 Asked: 8/7/2017 A close friend was diagnosed with TNBC in February of 2014.
 Asked: 7/30/2017 What is current opinion of oncologists re.
 Asked: 7/28/2017 I was diagnosed last year (at 48) with DCIS, grade 3, comedo, ER/PR negative, 2.5cm, with clear margins.
 Asked: 7/28/2017 Hi Lilly, I''m 31 years old and had neoadjuvant chemo for 2.0cm, node negative tnbc and double mastectomy.
 Asked: 7/27/2017 I was diagnosed with stage 1 grade 1 multifocal idc breast cancer no node involvement Nov 2016 had mastectomy January 2017 and rads which finished...
 Asked: 7/25/2017 I am just completing radiation treatment for IDC Left breast Stage IIB T2, N1, Triple positive Bc (tumor 3.41cm) The tumor shrunk from Chemo.
 Asked: 7/19/2017 Hello, If large stage II tumor with oncotype 13 (9% 10 year recurrence risk) is 10 years of AI definite? I''m concerned by reading studies...
 Asked: 7/13/2017 Not all questions were answered like treatment options and if both needed to be out... I have extremely dense breasts however only one had ultrasound which...
 Asked: 7/13/2017 Had TNBC my bilateral mastectomy was 5/24/16 took out 2 lymph nods both neg.
 Asked: 7/13/2017 I have extremely dense breasts however only one had ultrasound which found a 6mm at 12:00 and a 7mm at 1:00.
 Asked: 7/13/2017 Less than 1 cm Invasive Tubular carcenoma- treatments?
 Asked: 7/6/2017 I was dx with ER/PR + and HER2- stage 2 IDC last year at age 29.
 Asked: 7/6/2017 Hello, I am 60 yrs old with TNBC metaplastic.
 Asked: 7/3/2017 Hello, I have a question about recurrence.
 Asked: 6/30/2017 What is the current thinking of taking a biophosphonate for osteopenia in one hip probably due to arimidex.
 Asked: 6/30/2017 I am 6 years out of 1cm hormone + b.c.
 Asked: 6/20/2017 I have stage 1, TNBC, .8cm, negative nodes, lumpectomy.
 Asked: 6/19/2017 Dear Lillie. My wife was treated for breast cancer in 2002, by Dr.
 Asked: 6/19/2017 I had stage 1 breast cancer, 4 rounds of chemo, 16 radiation.
 Asked: 6/19/2017 I was diagnosed stage 1, no nodes, 9mm tumor at age 43 in 2005.
 Asked: 6/15/2017 I was diagnosed this past Feb with 1.7cm TNBC on my left breast, one lymph node positive.
 Asked: 6/15/2017 Hi, I just read your answer related to ER+/PR- BC.
 Asked: 6/14/2017 I read ER+, PR- cancer tend to recur early (within 5 years) similar to TNBC cancer.
 Asked: 6/12/2017 I had a 14 onco type score and was advised not to do chemo.
 Asked: 6/12/2017 Hi. I am a TNBC patient, and thought I had reached the 5 year anniversary without issues.
 Asked: 6/12/2017 I was dx with tnbc, May 2013.
 Asked: 6/10/2017 Just asked the question regarding tnbc, stage 1a 1.8, recurrence and survival.
 Asked: 6/10/2017 Hello. Diagnosed in January with TNBC, 47 years old, size 1.8, node negative.
 Asked: 6/8/2017 Dear Lillie, it it possible to undergo a hysterectomy or oophorectomy while taking letrozole medication? Thanks.
 
 
 
 
 

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