Ask an Expert: Survivorship Care Issues

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Survivorship Care Issues
Questions surrounding survivorship and life after cancer.
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 Asked: 1/10/2011 I was diagnosed with breast cancer at age 31 (in 1984) and underwent a modified radical mastectomy of the left breast at that time.
 Asked: 1/8/2011 Hello, I was diagnosed in October 2004 at age 48 (premenapausal.
 Asked: 1/3/2011 This may be a crazy question. Diagnosed Stage 3 with 6 positive lymph nodes in ''95.
 Asked: 12/31/2010 Why did my EKG change after having a bilateral mastectomy with silicone implants? I was forced to undergo unnecessary, stressful, expensive cardio tests
 Asked: 12/29/2010 As I enter the new year I can''t help but wonder if my cancer will return.
 Asked: 12/16/2010 It has been nearly 6 years since my diagnosis of breast cancer.
 Asked: 12/16/2010 I have to have arthroscopic surgery to repair my meniscus which was damaged in an auto accident.
 Asked: 12/14/2010 I want to continue to be followed by my oncologist forever, and not see my PCP anymore (he misdiagnosed me originally), however my oncologist says...
 Asked: 12/9/2010 I have had chronic pain in my right breast since lumpectomy and radiation 4 1/2 years ago.
 Asked: 12/2/2010 Had stage 1 breast cancer in 2009 - mastectomy performed - beacuse of size had radiation - ONCODX performed - 15 % chance of recurrence...
 Asked: 11/21/2010 Hi LillieThanks again for your great service.
 Asked: 11/12/2010 Hello Lillie. I had slightly raised ALP levels whilst on Arimidex earlier this year.
 Asked: 11/11/2010 Hi Lillie,I finished my treatment in April.
 Asked: 10/22/2010 Is it presumptuous to consider myself "healed" after treatment, stage IIb, hormone positive? I hear so much about recurrence, especially when lymph nodes are involved...
 Asked: 10/20/2010 To Whom It May Concern,I am a survivor from breast cancer and recently I am having fluids on my lungs.
 Asked: 10/19/2010 Lillie, What do you think about the medifast diet for breast ca survivors? I am 15 months out from last chemo, am on arimidex.
 Asked: 10/19/2010 Diagnosed in 2008, stage 1, no lymph involvement-36 rad treatments,lumpectomy, ER/PR+, no chemo done based on Oncotype score of 18 -no adjunctive therapy either -just...
 Asked: 10/16/2010 You gave the answer that most patients after 5 years have got a recurrence chance of below 5% depending on the stage.
 Asked: 10/12/2010 In 1998 at age 45 I had stage 2 breast cancer,tubular, estrogen receptive, had lumpectomy,chemotherapy, radiation.
 Asked: 10/12/2010 Hello,After hearing lots of different things I was wondering what the 5-year mark really means.
 Asked: 10/8/2010 If we are lucky enough to have an oncologist who is comfortable with the use of local oestrogens, what factors does he take into consideration...
 Asked: 9/27/2010 Does CLA interfere with aromasin?
 Asked: 9/1/2010 Is there a limitation on surgical reconstruction for insurance coverage? If a survivor is 13 years out from the original breast cancer surgery, is current...
 Asked: 8/22/2010 HI, I had stage 1 breast cancer last year.
 Asked: 8/22/2010 Dearest Lillie-I have been taking arimidex for about 1 yr (stage 2 er pr pos breast ca).
 Asked: 8/19/2010 Hi Lillie. I was diagnosed with multifocal stage 1 Er+PR- breast cancer nearly 8 years ago.
 Asked: 8/12/2010 dear lillie, I only voluteered after lost of dog, mental healing,a give back.
 Asked: 8/12/2010 update: waiting on Patholgy report for endometrium biopsy.
 Asked: 8/9/2010 How long do breast implants last.
 Asked: 8/3/2010 I have a family history of breast cancer.
 Asked: 8/1/2010 Dear Lillie, I pray this breast issue does not interfere with my volunteer work.
 Asked: 7/31/2010 Dear Lillie, I"m no sooner home a day an already in trouble with left breast I was trying to catch up with cleaning, I started...
 Asked: 7/29/2010 Dear Lillie, Just got a call from gyn wants to do a Endometrium Biopsy for Lining thicking.
 Asked: 7/24/2010 Dear Lillie, Gyn appt. went fine!! Just some fibroys an a cyst that doesn''t look bad.
 Asked: 7/23/2010 I had a lumpectomy Sept. 2009.
 Asked: 7/21/2010 I was diagnosed 3 years ago with stage IV Inflammatory Breast cancer.
 Asked: 7/19/2010 Fatigue continues to be a problem at intervals since right mastectomy in Feb.
 Asked: 7/14/2010 Dear Lillie, Gyn would like to do a trans vaginal ultra sound next week, just to look around,based on whats found.
 Asked: 7/14/2010 I am a two year survivor of stage 1 breast cancer that was Her2 positive.
 Asked: 7/13/2010 Pre-Menopause Question,Starting May 08,period was irregular,on and off Till July 09 stopped,Gyn tested 5/11/09 FSH Results 53.1 and again on 5/11/09TSH W/FREE RFX TSH 3rd...
 Asked: 7/11/2010 Have there been reports of uterine bleeding from Arimidex.
 Asked: 7/10/2010 Hi Lillie, I am wondering if there is anyting I can do to get rid of arthralgia "like" symptoms from aromatase inhibitors.
 Asked: 7/10/2010 Dear Lillie, So far so good, STERNUM PAIN STILL GONE AFTER DRAINING!!!Thank god my oncologist was there for me!!! i feel so much better!!I trying...
 Asked: 7/6/2010 I had a masctetomy back in feb 2010 fot invasive breast cancer and node disction 1 postive stage 3 grde 2.
 Asked: 6/30/2010 Oh No!!I am praying it doesn''t happen again.
 Asked: 6/27/2010 Hi Lilly,I was diagnosed with Bc in June 2006 at age 42.
 Asked: 6/24/2010 How do i get that question to him?
 Asked: 6/24/2010 Lillie, I believe my pain is stemming from left breast muscle injury.
 Asked: 6/23/2010 If I am not wrong there was a website to calculate risk of recurrence, rates of survival in breast cancer.
 Asked: 6/20/2010 Dr. Lillie, i can''t believe a simple thing such as a bike ride has did me in.Left breast and left arm hurts and swollen, i have been taking motrin since,but doesn''t seem to want to simmer it down.
 Asked: 6/19/2010 Dear Lillie, I was a somewhat concerned about my left arm when I applied for Volunteer job, i did say anything about my situation, for...
 Asked: 6/17/2010 Soy? Yes / much conflict information....please advise.
 Asked: 6/16/2010 Dear Lillie, It''s been a rough road, , i live with a man that has turned his back on me when i was diagnosed and...
 Asked: 6/16/2010 Hello Lillie-I went for a check up today (oncology).
 Asked: 6/14/2010 Dear RESEARCHERS,My wife has breast cancer and she will have about eight times chemotherapy and later surgery.Im following the your valuable advices of Broccoli sprouts...
 Asked: 6/12/2010 Please accept my apology for all my negative thoughts, it was a hurdle for me to overcome!! Sometimes we need to go backwards before we can go forward.
 Asked: 6/12/2010 Dear Lillie,I guess I was in disbeleive, a team that saved my life,couldn''t help me now and told to seek help elsewhere.I started to panic...
 Asked: 6/12/2010 your are so right lillie, Its just that it has taken me so long to get to you, and that worries me, if the problem...
 Asked: 6/10/2010 Dear lillie, What breaks my heart,is 3 years ago when this all started my p/s refused to addres my problem, every p/s i went to...
 Asked: 6/9/2010 Hi Lillie. Thank you for all your help so far.
 Asked: 6/8/2010 A "trying to understand the odds" question.
 Asked: 6/7/2010 Dear lillie, i have decided to take hold of dr.
 Asked: 6/6/2010 Lillie - I have identified you as a nurse leader in the field of breast cancer education and survivorship.
 Asked: 6/6/2010 Dear Lillie, I am a three year survivor or stage 1 breast cancer.
 Asked: 6/3/2010 I have allowed myself to get ruffled by some negative feed back.
 Asked: 6/3/2010 lillie I realize why i''m feeling that way, several doctors i have come across have given negative feed back (even without implants i could still...
 Asked: 6/2/2010 lillie, I am having a real hard time, i can''t seem to get beyond my inner fears and turn myself over to the professionals, for...
 Asked: 6/2/2010 It has been a year since I had a partial mastectomy and radiation for ductal carcinoma in situ in my left breast.
 Asked: 6/1/2010 Hello,recently I received an e-mail informing me of the new studies that took place in Johns Hopkins.
 Asked: 5/29/2010 Dear Lillie, I definity feel my left arm is playing an important part in all this.
 Asked: 5/29/2010 That is true!! Thank you for the uplift!!! What been a little strange to me lately or maybe i''m just more aware now, when i...
 Asked: 5/28/2010 Dear lillie, I still don''t know what the real issue is, weather it is caused by a trauma of some sort to my breast, a...
 Asked: 5/24/2010 I feel like i have missed so much over the past few years.
 Asked: 5/23/2010 Dear Lillie, Although you look fantastic, and i wish i had the nerve to get through a procedure like that, i feel simple saline, or...
 Asked: 5/23/2010 Dear Lillie, It was a pleasure to meet you and the John Hopkins Team, everyone there made me feel so comfortable and although i had...
 Asked: 5/20/2010 Does Johns hopkins recommend the use of Essiac 8 herb tea?
 Asked: 5/16/2010 Dear Lillie, Even though i asked my surgeon to remove my implants in 08, due to unknown pain,continued seroma''s and now sternum issues.
 Asked: 5/16/2010 Lillie, i seem to be getting a lot more pain in breast and around top of belly, left implant seems to be swelling again, drain...
 Asked: 5/15/2010 I know L. i''m in so many different directions, on no hand i thinking seroma involvement is the problem, on the other hand maybe breast,sternum, injury or trama, and on another hand underlying condition like costrochontis,fibromyalgiaetc.
 Asked: 5/15/2010 Dear Lillie, It was suggested that i get an Mri of Chest wall looking at sternum & Ribs, back in March, But Aetna denied based...
 Asked: 5/14/2010 I have some reservations! Maybe i should try to get a doctor to do an MRI of chest wall, ribs and sternum locally to see...
 Asked: 5/14/2010 i can no longer fight this on my own!!! .
 Asked: 5/13/2010 I ran across an artical That Said it came from John Hopkins about alturnative treetment for canser.
 Asked: 5/12/2010 Dear Lillie, update 5/11/10 less than 20cc in 24hr, plastic surgeon remove drain from left breast today and squeezed any remaining fluid out.
 Asked: 5/10/2010 Dear Liliie, I had to change appt.
 Asked: 5/9/2010 Hello Lillie...diagnosed 12/08, bilateral 12/08, chemo ACT spring ''09'', radiation June/July 09, on Tamoxifen since August 09.
 Asked: 5/8/2010 Dear Lillie, Thank you for your understanding!! Looking forward to coming your way!!! Donna.
 Asked: 5/8/2010 Dear lillie, I was called into Plastic Surgeon office today, to possibility remove drain, but he noticed i was still draining about 30cc, so i...
 Asked: 5/7/2010 I was dx in 2007 with stage 1 IDC (BRCA1, high grade, triple negative) at age 36.
 Asked: 5/7/2010 Dear Lillie, I faxed Courtney my Personal Health History File today! Like i mentioned it is important to me that Dr.
 Asked: 5/7/2010 On 3/12/10 I had a bilateral mastectomy and alloderm expander.
 Asked: 5/7/2010 Dear Lillie, Welcome home!!! Should i send Personal Health History prior to appt.
 Asked: 5/6/2010 Dear Lillie, Its now Thursday,i still have drain, Monday i drained 90cc, tues 80cc,wed.30,Thurs.
 Asked: 5/5/2010 Finished bilateral diep (DCIS 2008, right breast w/ original surgery on left in 1992 w/ chemo and rads) with all stages completed in November 2009.
 Asked: 5/1/2010 I was diagnosed with IDC Stage 1 grade 1 er positive pr- hr2- bc in 2005.
 Asked: 4/30/2010 I was treated for invasive lobular cancer in Jan.
 Asked: 4/26/2010 Dear Lillie, Wow, that is a trip and a half!!! It is sunday and my left implant is twice the size of right side.
 Asked: 4/25/2010 I am a 61 year old woman,who just finished 6 rounds of chemotherapy.

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