Ask an Expert: View a Question
 
 
 
 

Ask an Expert is a free question-and-answer service about breast cancer and breast health that is available on weekends. If you'd like to ask a question or comment, please visit us again on Saturday or Sunday. In the meantime, please search the existing topics using the search tool at the top of the page. It's quite possible that one of our many existing topics already addresses your question.

If you would like a consultation with a breast specialist at the Johns Hopkins Avon Foundation Breast Center, call 443-778-2778. It is possible to get an appointment for a second opinion within a few days of contacting us.

We hope you find the information helpful!

ForumQuestionsAsk a Question
Psychological Support
Questions about support for the mental aspects of breast cancer & treatement.
267 Ask a Question

AskedPublicly Submitted Question
7/19/2009Hi. I was diagnosed with IDC (grade 1, stage 1, 1.4cm) this past May at age 49. Because I am quite small breasted and because other suspicious lumps were found with an MRI, I decided on the mastectomy/no radiation route, fearing that a lumpectomy and three more biopsies would not produce an acceptable cosmetic result. SNB was negative, other lumps were benign and I learned a few weeks ago that my Oncotype score is low (9). In other words, very very positive prognosis, which leaves me quite grateful and relieved on the one hand, but on the other, I'm really struggling. Given the small size, low grade, early stage and very low Oncotype score, I'm finding it hard not to wonder what the hell all the fuss was about and if everything (loss of breast, loss of sensations, expense) was really necessary. I am not an uneducated woman and understand that cancer doesn’t just go away, but I can’t help feeling as if we jumped the gun a bit and threw the baby out with the bathwater. To add to my doubts, I read in a breast imaging book online that slow growing tumors can sometimes be growing 20-30 years before they are large enough to detect. So this is my question. Is it even remotely possible that I could have lived a nice, long, healthy life without the tumor ever causing me a problem?
RepliedJHU's Breast Center Reply
7/19/2009first, congrats on a favorable prognosis. would this tumor have remained there and never harmed you? no one knows... there are certainly women who have gone undiagnosed and die of other things. it is strongly recommended to always surgical treat breast cancer as soon as it is found. For me the bigger question was the decision to do mastectomy. standard of care would have been to do biopsies (core, not open excisional) to rule out the presence of multiple tumrs being in the breast. multiple tumors results in the necessity to do mastectomy. but sounds like fear and haste thrust you into mastectomy. I'm hoping that reconstruction was part of the surgery also done. if not, then pursue it now. you are welcome to come our way. 443-287-2778. we make decisions based on the information we have at any given time. you made a decision. don't try to second guess yourself now. it will drve you nuts. move forward, hopefully knowing that you are a long term survivor of the future.

Please note: This service is not intended to provide primary medical advice concerning specific medical care or treatment. Ask an Expert is a free service operated by health care professionals at the Johns Hopkins Avon Foundation Breast Center. Due to the volume of questions and their complexity, there are times when medical oncologists, surgeons, radiation oncologists or oncology nurses are consulted for their input. These individuals volunteer their time for this service and will respond as soon as they are able. Please do not post or send the same question to us in multiple locations or categories.

 
 
 
 
 

© The Johns Hopkins University, The Johns Hopkins Hospital, and Johns Hopkins Health System, All rights reserved.