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LCIS - Lobular Carcinoma In Situ Questions about lobular carcinoma in situ. |
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| Asked | Publicly Submitted Question | ||
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| 7/2/2010 | I was diagnosed three years ago with LCIS which was found during an ultrasound for another suspicious lump(which was benign). My oncologist suggested Tamoxifen and I have been on it for three years in December. I have experienced horrible joint pain and fatique while on the tamoxifen, not to mention hair loss and terrible dry eyes. The thought of having to take tamoxifen for two more years seems pretty daunting at this point. My mother has had both breasts removed due to breast cancer, but there is no other family history and I tested negative for the BRAC gene. Would it be irresponsible for me to discontinue the tamoxifen at this point? I'm not sure I can take two more years of this pain. Thank you. | ||
| Replied | JHU's Breast Center Reply | ||
| 7/2/2010 | It's important to have a discussion with your oncologist about all these side effects and that it is due to its impact on your quality of life that you want to discontinue the hormonal therapy. See about getting your vitamin D level checked as there has been found a correlation between joint pain while on hormonal therapy and low vitamin D levels. I wouldn't call what you want to do being irresponsible. you are trying to weight the benefits against its impact on your life. | ||
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