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|Mastectomy with Tissue Expander
Questions about Mastectomy with Tissue Expander.
|Asked||Publicly Submitted Question|
|8/16/2011||hello...if i am BRAC2 positive had a prophylactic mastectomy and a full hysterectomy..was told that i was a ticking time bomb with the tumors i had so i did the mastectomy and am currently doing my reconstruction. i guess my question is .... i am 41 with being BRAC2 ...what do i need to do in the future and what should i have my doctor check. My gynecologist Dr said that he doesn't need to see me anymore, the oncologist said the same because i had the mastectomy with no cancer, so who keeps up with the tiny percent?|
|Replied||JHU's Breast Center Reply|
|8/17/2011||Thank you for turning to the Johns Hopkins Breast Center with your questions. Great question! By having the prophylactic surgeries, you have significantly lowered your your risk of cancer, but not completely eliminated it. So routine medical follow up should continue on a yearly or semi yearly basis. This would include GYN followup, as well as follow-up by your breast plastic reconstructive surgeon performing your reconstruction. Follow up care would examine for any skin changes, chest wall or axillary masess that could represent primary breast cancers in in retained breast tissue or nodal tissue, along with complete physical exam. Also, BRCA mutations are associated with an increased risk for other cancers, such as pancreatic and melanoma. Some literature suggests endoscopic ultrasonography may be beneficial to 'screen' pancreas; and annual skin and eye examinations are recommended as well. In addition, pyschosocial support is recommended as these phorphylactic surgeries are irreversable, and women may need help in processing this entire journey. So you see, it is not a case of 'cut it off or out' and you are done. Thus if your docs now are saying no follow up, seek follow-up care elsewhere at an expert center, by specialists who understand the need and value of follow-up care with BRCA mutation carriers. Hope this helps, and best wishes!|
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