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LCIS - Lobular Carcinoma In Situ
Questions about lobular carcinoma in situ.
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AskedPublicly Submitted Question
9/12/2011I am a 54 year old perimenopausal woman who has been treated as high risk for breast cancer for 4 years. I have had 2 benign tumors removed, one fibroid and one phyllodes. Atypical lobular hyperplasia was discovered when the phyllodes was taken out. I have rotated mammograms and MRI since then. My most recent MRI showed a change and then a mammogram and ultrasound was done. I then had a MRI guided needle core biopsy which found LCIS. I am thinking about having a preventative mastectomy with reconstruction. Does this sound reasonable, given my history?
RepliedJHU's Breast Center Reply
9/12/2011if the high risk status is limited to benign masses being removed and ALH being found and now confirming LCIS, actually it would be considered a very drastic move to do prophylactic mastectomies. Having LCIS is really not much different than having ADH or ALH. so it isn't increasing your risk more having found LCIS. If you have significant family history however and/or other notable risk factors then a thoughtful discussion with a high risk genetically saavy medical oncologist may benefit you now. some women do however opt to do what you are proposing. peace of mind is a powerful thing, however making decisions based on limited information can result in unhappiness later.

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