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LCIS - Lobular Carcinoma In Situ Questions about lobular carcinoma in situ. |
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| Asked | Publicly Submitted Question | ||
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| 4/6/2012 | I have a 2008 and 2010 diagnosis of LCIS in the right breast (round epithelial cells with high nuclear to cytoplasmic rations, round nuclei, some of which have small nucleoli and cytoplasmic vaculization. Some ductules give a cloverleaf appearance. No invasive carcinoma identified. No atypical ductal hyperplasia. Fbrosis, micorcycstic changes and apocrine metaplasia. Microcalcifications are present within the LCIS.) Since 2008, there have been 4 needle biopsies, two excisional biospsies, MRIS, nuclear MRIs and I have finally decided to have a bilateral masectomy, DIEP surgery. I still feel so unsettled and the surgery is Tuesday. One surgeon tells me I am @ 60% risk of cancer, another tells me 20%. They both agree the masectomy is an option. To complicate matters, I also have a non-functioning pituitary adenoma and Sjogren's Disease. I made the decision because every six months there is a concern with more MRIs and more ultrasounds and more mamographies. Can you give me some feedback? I was relieved to learn about FLAP surgery after all this with no resolution. Do you feel it is too drastic to do this with an LCIS diagnosis? (I am 50, and overweight) | ||
| Replied | JHU's Breast Center Reply | ||
| 4/7/2012 | that's a big step to take for a risk that is probably in the area of 20%. To have risk as high as 60% you would need to be harboring BRCA 1 gene. If you are worrying about breast cancer every day then this is a reasonable step to take for peace of mind and quality of life. A less drastic step though would be taking tamoxifen that would cut your risk in half. | ||
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