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Concerns about Breast Cancer Family History
Questions on genetics, family history & breast cancer.
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AskedPublicly Submitted Question

I had a positive biopsy for ADH, followed by a lumpectomy which was positive for DCIS. I'm 50, still fully menstruating. Mother had premenopausal breast cancer with recurrence after modified radical mastectomy. 3/4 sisters have had genetic testing, positive for BARD1, and I also tested positive for BARD1. All sisters that tested positive are receiving high risk screening.

The 4th sister is a Kaiser member and they do not score her in the high risk category for screening, since BARD1 is a mutation of unknown significance, and they consider my DCIS "postmenopausal secondary to age". Should she pay out of pocket for her 3-D mammo and MRI's? Is she in a higher risk category? Is it common to have single-payer systems use different risk stratification to avoid doing expensive testing?

RepliedJHU's Breast Center Reply
2/2/2017unusual for one payer to not be using the same criteria everyone else does. she can use this information however to appeal her case and get these types of screening tests covered. she can also get a lawyer to send a letter that says since she is being denied the opportunity to have identified an early diagnosis should she one day get breast cancer then they would be liable for not covering the screening. All of that said, another option is prophylactic mastectomies with reconstruction.

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