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Concerns about Breast Cancer Family History
Questions on genetics, family history & breast cancer.
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AskedPublicly Submitted Question
2/2/2017Hello,

I had a positive biopsy for ADH, followed by a lumpectomy which was positive for DCIS. I'm 50, still fully menstruating. Mother had premenopausal breast cancer with recurrence after modified radical mastectomy. 3/4 sisters have had genetic testing, positive for BARD1, and I also tested positive for BARD1. All sisters that tested positive are receiving high risk screening.

The 4th sister is a Kaiser member and they do not score her in the high risk category for screening, since BARD1 is a mutation of unknown significance, and they consider my DCIS "postmenopausal secondary to age". Should she pay out of pocket for her 3-D mammo and MRI's? Is she in a higher risk category? Is it common to have single-payer systems use different risk stratification to avoid doing expensive testing?

RepliedJHU's Breast Center Reply
2/2/2017unusual for one payer to not be using the same criteria everyone else does. she can use this information however to appeal her case and get these types of screening tests covered. she can also get a lawyer to send a letter that says since she is being denied the opportunity to have identified an early diagnosis should she one day get breast cancer then they would be liable for not covering the screening. All of that said, another option is prophylactic mastectomies with reconstruction.

Please note: This service is not intended to provide primary medical advice concerning specific medical care or treatment. Ask an Expert is a free service operated by health care professionals at the Johns Hopkins Avon Foundation Breast Center. Due to the volume of questions and their complexity, there are times when medical oncologists, surgeons, radiation oncologists or oncology nurses are consulted for their input. These individuals volunteer their time for this service and will respond as soon as they are able. Please do not post or send the same question to us in multiple locations or categories.

The contents of this portion of the website cannot be used as a substitute for a consultation with your doctor or other healthcare provider. It also may not represent the opinions of other Johns Hopkins professionals. It is a free service performed on volunteer time and intended to provide feedback to questions posted by consumers however should not be used as a directive or instructions to now follow. Seeing your own medical provider is always important in getting your needs and questions addressed. In the majority of cases, a clinical examination, review of pathology slides and xrays, along with other medical information is needed to truly provide a consultative service. If you wish to receive a formal consultation with our physicians please call 443-997-8282 for surgical appointments and 410-955-8964 for medical or radiation oncology appts. For breast imaging, call 410-955-4100.

 
 
 
 
 

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