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Complex Cysts
Questions about complex breast cysts.
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AskedPublicly Submitted Question
6/7/2017Hi, I'm trying to figure out the typical number of cysts that a woman normally has and the maximum number ever found. Background: I've had lumpy breasts for 7 years and pain for over a year. A few months ago, the pain was so severe I couldn't sleep at night so I was sent for a mammogram and an ultrasound. Unrelated to the pain, they found a benign intraductal papilloma that is being removed next week (biopsy was last week).

The part that worries me is I was told I have over 100 cysts in my breasts, many of them complex, and that is the cause of my pain. They vary in size from a few mm to over 1 inch. I was told I can reduce my stress and eliminate caffeine to help manage the pain, but that there's nothing else to be done about it. I was told it was pointless to aspirate given the large number and likely recurrence. The scary part though is how all the technicians reacted. When I went for the mammogram, I was called an "over-achiever" and the technician said she had never seen that many. The next technician refused to do my ultrasound, saying it would take over 5 hours to map it and she made such a fuss that a doctor came in to relieve her and I was given a different technician. I was told they would only map the largest ones and whatever they could manage in 2 hours.

I've seen 4 doctors now over the past few months. When I ask what is typical/atypical for the total number of cysts, I'm told to "not worry about it" - and accept that I'll be in pain until post-menopause when they will likely resolve themselves.

Does anyone here know what is typical in terms of number of breast cysts and the maximum medical record? Is there anything to be done about the pain other than to just live with it?
RepliedJHU's Breast Center Reply
6/7/2017there is no statistical data about average vs max. I have seen a hundred in other women but its rare. those who have cysts commonly have 5-10 however. they pose a challenge for reading mammograms and ultrasounds.

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