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ADH - Atypical Ductal Hyperplasia
Questions about atypical ductal hyperplasia.
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AskedPublicly Submitted Question
11/22/2017I was diagnosed with atypical ductal hyperplasia and atypical lobular hyperplasia following an mri guided core needle biopsy. The lump is 5mm and in my right breast. I'm 38yrs old and have no family history of breast cancer. But at age 17 I was diagnosed with Hodgkin's lymphoma. I was treated with chemo and mantle field radiation. I know I have an increased risk so I've been getting mammograms and mri starting after 10yrs post diagnosis. I'm on birth control pills and haven't reached menopause. On my last scan in April 2017 this lump didn't exist. I'm scheduled to have a surgeon take out the lump to make sure the biopsy didn't miss any cancer cells. I was under the impression growing up that any further radiation to my chest area wasn't an option. I'm already followed very closely with scans. How do I even begin the process to help prevent best cancer from developing? Not only do I have an increased risk due to radiation treatments but now I also have ADH & ALH. I've heard from other Hodgkin's survivors getting prophylactic double mastectomy. I'm only 38 this is a big decision. I'd also rather not have to deal with cancer again.
RepliedJHU's Breast Center Reply
11/25/2017Very likely the ADH and ALH are due to the mantle radiation. you are correct that if you needed a lumpectomy for removal of actual breast cancer then you would not be able to get breast radiation afterwards, therefore the treatment for someone who has breast cancer and previously had the type of radiation that you did would be to do a skin sparing mastectomy with reconstruction, preferably diep flap reconstruction. that said, the surgeon's mission currently is to do a surgical biopsy to determine if cancer is present. you may want to explore and learn more about risk prevention given you already have atypical cells however. this would involve prophylactic mastectomies with reconstruction of both breasts. if you want to come to us, and I strongly recommend you do, just call 443-997-1513.

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