Ask an Expert: View a Question

Ask an Expert is a free question-and-answer service about breast cancer and breast health that is available on weekends. If you'd like to ask a question or comment, please visit us again on Saturday or Sunday. In the meantime, please search the existing topics using the search tool at the top of the page. It's quite possible that one of our many existing topics already addresses your question.

If you would like a consultation with a breast specialist at the Johns Hopkins Avon Foundation Breast Center, call 443-997-8282. It is possible to get an appointment for a second opinion within a few days of contacting us.

We hope you find the information helpful!.

ForumQuestionsAsk a Question
ADH - Atypical Ductal Hyperplasia
Questions about atypical ductal hyperplasia.
1,082 Ask a Question

AskedPublicly Submitted Question
11/22/2017I was diagnosed with atypical ductal hyperplasia and atypical lobular hyperplasia following an mri guided core needle biopsy. The lump is 5mm and in my right breast. I'm 38yrs old and have no family history of breast cancer. But at age 17 I was diagnosed with Hodgkin's lymphoma. I was treated with chemo and mantle field radiation. I know I have an increased risk so I've been getting mammograms and mri starting after 10yrs post diagnosis. I'm on birth control pills and haven't reached menopause. On my last scan in April 2017 this lump didn't exist. I'm scheduled to have a surgeon take out the lump to make sure the biopsy didn't miss any cancer cells. I was under the impression growing up that any further radiation to my chest area wasn't an option. I'm already followed very closely with scans. How do I even begin the process to help prevent best cancer from developing? Not only do I have an increased risk due to radiation treatments but now I also have ADH & ALH. I've heard from other Hodgkin's survivors getting prophylactic double mastectomy. I'm only 38 this is a big decision. I'd also rather not have to deal with cancer again.
RepliedJHU's Breast Center Reply
11/25/2017Very likely the ADH and ALH are due to the mantle radiation. you are correct that if you needed a lumpectomy for removal of actual breast cancer then you would not be able to get breast radiation afterwards, therefore the treatment for someone who has breast cancer and previously had the type of radiation that you did would be to do a skin sparing mastectomy with reconstruction, preferably diep flap reconstruction. that said, the surgeon's mission currently is to do a surgical biopsy to determine if cancer is present. you may want to explore and learn more about risk prevention given you already have atypical cells however. this would involve prophylactic mastectomies with reconstruction of both breasts. if you want to come to us, and I strongly recommend you do, just call 443-997-1513.

Please note: This service is not intended to provide primary medical advice concerning specific medical care or treatment. Ask an Expert is a free service operated by health care professionals at the Johns Hopkins Avon Foundation Breast Center. Due to the volume of questions and their complexity, there are times when medical oncologists, surgeons, radiation oncologists or oncology nurses are consulted for their input. These individuals volunteer their time for this service and will respond as soon as they are able. Please do not post or send the same question to us in multiple locations or categories.

The contents of this portion of the website cannot be used as a substitute for a consultation with your doctor or other healthcare provider. It also may not represent the opinions of other Johns Hopkins professionals. It is a free service performed on volunteer time and intended to provide feedback to questions posted by consumers however should not be used as a directive or instructions to now follow. Seeing your own medical provider is always important in getting your needs and questions addressed. In the majority of cases, a clinical examination, review of pathology slides and xrays, along with other medical information is needed to truly provide a consultative service. If you wish to receive a formal consultation with our physicians please call 443-997-8282 for surgical appointments and 410-955-8964 for medical or radiation oncology appts. For breast imaging, call 410-955-4100.


© The Johns Hopkins University, The Johns Hopkins Hospital, and Johns Hopkins Health System, All rights reserved.