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Survivorship Care Issues
Questions surrounding survivorship and life after cancer.
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AskedPublicly Submitted Question
12/27/2017A Ki-67, cell proliferation rate was never done on my pre-op core biopsy and my surgical lumpectomy sample. Oncotype staff said they did a Ki-67 but no result on my test. I did ask Genomic Health/Oncotype to tell me Ki-67 results and they have not performed. When I asked them to send the results to my MD the same results were given to me without the Ki-67. I was in the intermediate zone.
Any suggestions how I can get a large health care organization and Genomic Health to perform or is this a standard method to use on patients to get them into high risk arms for clinical trials for this company without informing the patients? NIH/NCI monies for Clinical trials at site locations who provide patients are a highly profitable business. I was told to choose chemo or no chemo without this information and it is past 12 weeks from my surgery. MD who did this was promoted to department head after this mess. I donít mind making an informed consent, but it is the MDís responsibility to give me the info. At this point why would the MD not want me to see a Ki-67 result?
RepliedJHU's Breast Center Reply
12/28/2017I cannot speak on behalf of others as you know. Ki67 is a standard pathology prognostic factor however and beginning in 2018 it will become required before the staging criteria is about to change (The AJCC staging system) and Ki67 is going to be part of the required reporting elements. why not call the pathologist who issued the pathology report and see if he/she can tell you. many women are in the intermediate range. take a look at the oncotypeDX report and see how many percentage points of risk there is to get metastatic disease and then look to see how many percentage points of risk go down by doing chemo. you will know from this hopefully how aggressive you want to be.

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