CARE RELATED
1.
Diagnosis
a. Where was your breast cancer diagnosed?
Select One
Physician's Office
Breast Center
Outpatient Clinic
Other
Who was the doctor who made the diagnosis?
b.
How quickly and without delay your breast cancer diagnosis was made?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
c.
How fully and clearly you were informed about your diagnosis?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
d.
The accuracy of your diagnosis as far as you know?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
2.
Surgery
a. Where was your breast cancer surgery performed?
Select One
Hospital
Ambulatory Surgery Center
Outpatient Clinic
Radiology Facility
Other
b. What breast cancer surgery did you have?
c.
How complete the information was about the different types of breast cancer surgery?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
d.
How complete the information was about the possible benefits or harm from the different types
of breast cancer surgery?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
e.
Your participation in the decision about which breast cancer surgery was better for you?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
f.
Your participation in the decision to have your surgery as an outpatient (if you did)?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
g.
Were you comfortable with the guidance your doctor gave you about the type of surgery
you could have?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
h.
How promptly your surgery was performed?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
i.
The preparation before the operation for how you would feel afterward?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
j.
The handling of concerns you had after surgery?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
k.
The competence and skill of the doctors and staff who took care of you?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
l.
The surgical care you received overall?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
3.
Home Health Care
Did you receive home health care after your surgery?
Yes
No (if no, skip to section #4)
a.
How skilled were the home health nurses?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
b.
How sensitive to your needs were the home health nurses?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
4.
Radiation Therapy
Did you receive therapy?
Yes
No (if no, skip to section #5)
If yes, where was the radiation therapy performed?
Who was your radiation oncologist?
a.
How fully informed you were about the potential benefits and harm of radiation therapy?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
b.
Your participation in the decision to receive radiation therapy?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
c.
How long you had to wait for your individual radiation treatments?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
d.
The skill of the radiation therapy technicians?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
e.
The courtesy of the radiation therapy technicians and doctors?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
f.
How well prepared you were before your radiation therapy for how it made you feel?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
g.
How promptly any concerns you had with radiation therapy were handled?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
h.
How carefully any concerns you had with radiation therapy were handled?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
i.
The radiation therapy you received overall?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
5.
Adjuvant Chemotherapy
Did you receive adjuvant chemotherapy?
Yes
No (if no, skip to section #6)
If yes, where was the adjuvant chemotherapy performed?
Who was your doctor for your chemotherapy treatment and follow up care?
a.
How fully informed you were about the potential benefits and harm of adjuvant chemotherapy?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
b.
Your participation in the decision-making about whether you should receive adjuvant chemotherapy?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
c.
How long you had to wait for your adjuvant chemotherapy treatments?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
d.
The skill of the nurses and doctors who administered your adjuvant chemotherapy?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
e.
The courteousness of the nurses who administered your adjuvant therapy?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
f.
How well prepared you were before chemotherapy for how it made you feel?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
g.
How promptly any concerns you had with adjuvant chemotherapy were handled?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
h.
How carefully any concerns you had with adjuvant chemotherapy were handled?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
i.
The adjuvant chemotherapy you received overall?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
6.
Hormonal Therapy
Did you receive hormonal therapy?
Yes
No (if no, skip to section #7)
a.
How fully informed you were about the potential benefits and harm of hormonal therapy?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
b.
Your participation in the decision about whether you should receive hormonal therapy?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
c.
How well-prepared you were for how hormonal therapy made you feel?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
7.
Coordination of Care
a.
The coordination of the breast cancer care you received from the doctors and nurses involved in your treatment?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
8.
Psychosocial Aspects of Care
a.
How well informed you were about the psychological and social problems
caused by breast cancer and its treatment?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
b.
How well informed you were about services at the site where you received your breast cancer
treatment and in the community for dealing with the psychological and social problems caused by
breast cancer and its treatment?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
c.
How effectively the psychological and social aspects of your breast cancer and its treatment
were addressed?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
d.
Have you attended any support group meetings?
If yes, how helpful was it?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
e.
Did you talk with a social worker for assistance or support during your treament?
f.
Did you talk with a breast cancer survivor provided by the hospital or doctor's office where you were treated?
Do you recall the name of the survivor?
9.
Post-Treatment Medical Care
a.
How well prepared you were for any of the concerns you had after your breast
cancer treatment was completed?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
b.
How promptly and how thoroughly any concerns you have had after treatment have been handled?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
10.
Urgent Problems and Emergencies
a.
How well prepared you were by your doctors and nurses who treated you for
breast cancer about what to do in case of an urgent problem or emergency?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
b.
How available the doctors and nurses were to you at the site where you received your
breast cancer treatment when you developed an urgent problem or emergency? (Anser N/A if
not applicable)
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
c.
How available the doctors and nurses have been to you for walk-in visits at the site
where you received your breast cancer treatment when you developed an urgent problem or
emergency? (Answer N/A if not applicable)
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
11.
Education
a.
How educated you were about your breast cancer and its treatment (this
includes all sources of education available at the site where you received your breast
cancer treatment; i.e., staff, books, pamphlets, audiovisual materials)?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
b.
How effectively the doctors and nurses at the site where you received your breast
cancer treatment educated you about your breast cancer and its treatment?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
12.
Overall Evaluation
a.
How satisfied were you about the care you received for your breast cancer
treatment overall?
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
13.
We are interested if you would recommend the site where you received your
breast cancer to family members or friends. Would you say:
14.
What comments or suggestions do you have for how to improve the care for
women diagnosed and treated for breast cancer? Please try to comment on those areas you
rated poor or fair in this survey.
15.
Your breast cancer was diagnosed:
16.
In choosing where you had your treatment, would you rate the value of the
following statements: Please use the scale of 1 to 5, 1 meaning "not important" and 5
meaning "very important."
a.
Reputation of the institution
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
b.
Reputation of the doctors
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
d.
Reputation of the nursing staff
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
d.
Ease of communicating with physicians and nurses
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
e.
Confidence in decisions made about care
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
f.
Location of facility
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
g.
Prior familiy experience at the institution
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
h.
Prior experience of a friend at the institution
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
i.
My insurance company chose for me
Select One
1 = Poor
2 = Fair
3 = Good
4 = Very Good
5 = Excellent
17.
Which insurance coverage did you have at the time of your breast cancer
treatment?
18.
19.
20.
Thank you for taking your valuable time to participate in this survey. Click here to
submit your answers: